Articles

• Understanding Xeroderma Pigmentosum.  PDF document from the National Institutes of Health (NIH).  Xeroderma pigmentosum (pronounced: zer-oder-ma/pig-men-toe-sum), XP, is a very rare inherited disease that causes extreme sensitivity to the sun’s ultraviolet rays. Unless patients
  with XP are protected from sunlight, their skin and eyes may be severely damaged. This damage may lead to cancers of the skin and eye. XP has been identified in people of every ethnic group all over the world..."
• Xeroderma Pigmentosum articles from PubMed of the National Library of Medicine.  The articles listed here tend to be highly technical research papers, but careful searching of the articles can often uncover important and useful information.  

Books

•  Books about Xeroderma pigmentosum from Amazon.com.

Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

• BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group. 
• Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.
• Xeroderma pigmentosum.   "For patients, families, and medical professionals dealing with xeroderma pigmentosum. Share your experience and knowledge. Help one another."  Yahoo! Group.           

News

• Xeroderma pigmentosa news from Google News.  Comment:  Because not much is written about this disease, your search may not show any results.  If there are no results, try again in a few days or weeks.

Organizations

• Children of the Moon.  For xeroderma pigmentosum patients.
• Enfants de la Lune.  In French.  Supports xeroderma pigmentosa families in France.
• XP Support Group.  Located in the United Kingdom.  "The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend Camp Sundown or respite in a protective environment."  
• Xeroderma Pigmentosa Society.  "The Xeroderma Pigmentosum Society, Inc. (XPS), was formed by the parents of a daughter with XP, to serve this
  mission:
  
  1. Increase public awareness through education about xeroderma pigmentosum and related conditions.
  2. Provide protection, through support and information exchange, to victims of this disease and their families.
  3. Promote medical research to achieve a cure for XP."
• Xeroderma pigmentosum Website.  Available in English, French, German.  Produced by Moni and Dirk Prenting with Markus and Melanie."

Patient Web Sites

• Christophe Ramsamy.  "My name is Christophe and I live on the island of Mauritius in the Indian Ocean. I live a moonlit life because I have Xeroderma Pigmentosum (XP). You can learn more about it by following my road signs above to the About Me and XPS links." 
• Friends of Aimee.  "Aimee is a rambunctious toddler. Who's life was changed in march of 2004. Aimee was diagnosed with Xeroderma Pigmentosum "XP".  This website was designed by friends to help support Aimee through her struggles with XP."
• Friends of Riley.  "A child's Web site about Xeroderma Pigmentosum."

Photographs

• Xeroderma Pigmentosum images from Google Images.

Videos

• Xeroderma Pigmentosum videos from YouTube.com.