MCS Forums Directory

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

• AZ-MCS-ES-Emergency-Network.  "This is an announcement board for the Arizona MCS/ES Emergency Response Network; created to provide a central on-line clearinghouse for information about current and/or potential emergency situations in our Arizona communities which affect the Multiple Chemical Sensitivity/Electromagnetic Sensitivity population; to facilitate rapid and appropriate response to MCS/ES persons in crisis."  Yahoo! group.
• alt support.mcs. Multiple Chemical Sensitivity.

• CFS Zero Based Protocol.  "A support group for individuals doing or interested in the Zero Based Protocol for Chronic Fatigue Syndrome [ CFS CFIDS ], Multiple Chemical Sensitivity [MCS], Irritable Bowel Syndrome [ IBS IGS], Fibromagia [ FM ], and Arthritis [ RA ]. It is also known as For What It Is Worth or No Deficiency Left Behind Protocol.
  
  This protocol is outlined at Zero Based Protocol. This protocol may be very significant for those who have lowered Vitamin D levels or Vitamin 1,25D in the mistaken belief that the above illnesses are TH1 illnesses ( possibly based on misinformation on Marshall Protocol.com). Medical literature indicates that these illnesses are TH2 illnesses and not TH1 illnesses."  Yahoo! group.
• Canary Singles.  "As anyone living with MCS/FMS/CFIDS knows meeting people, finding fulfilling friendships, finding a life partner is a very difficult task indeed. Canary Singles offers place where people in these categories can meet in an environment where there will already be some level of understanding and acceptance of the struggles, symptoms and life limits that are involved in our lives, therefore hopefully lifting the barriers that prevent us from connecting with others.
  As a person living with MCS/FMS/CFIDS myself, this site has grown out of my need and frustrations to meet people, make friends and find a life partner that can accept me and my illness. It is my hope that this site will grow to fill the gap of a much needed service in our community. I hope you will join me in making this happen.
  
  Canary Singles is open to all individuals who live with MCS/FMS/CFIDS or other Invisible Illness Categories that may have extreme limits and feel they may fit in here."
• Chemical-Illnet "Chemical-Illnet is an Internet community where the chemically ill, their friends, family and loved ones can come to gather information, support, and learn how they can become pro-actively involved in advocating for accommodation and acceptance of this illness. Members include activists, medical professionals, scientists, and the general public. The vast majority of our members are chemically ill or injured and deal with varying degrees of disability on a daily basis."
• Chemical Injury Support Registry.  "Chemical Injury Support Registry was established for the main purpose of bringing together those who wish to be active in various write-in campaigns supporting issues regarding chemical injury.
  
  This list is also for those who would like to produce change in the manufacturing of chemically based products to those that are non-toxic and chemical-free.
  
  Posts for this group should be limited to the following:
  
  1). Identifying a particular chemical issue members would like to start a write-in campaign for.
  
  2). Posts should include background information regarding the issue, such as a newspaper article link, etc. Also any contact information for individuals the group should send email to."  Yahoo! group.  
• CreativeCanariesCommunity.  "This group is an online meeting place for artists with multiple chemical sensitivity. We offer connections between - and information for - artists with MCS and related illnesses. In the moment, we connect artists from Germany, the USA, Canada, Denmark and the Netherlands.
  
  If you want to join this group, please introduce yourself with a short mail revealing your full name, address and what kinds of art you are involved in. Membership in the CreativeCanariesCommunity automatically includes membership in the international network Artists with MCS."  Yahoo! group.
• Detox for environmental illnesses.  "'Detox' is a group to serve chemically injured, environmentally ill, multiple chemical sensitivity, and related illness such as chronic fatigue, candidiasis, hypoglycemia, lupus, and others.
  
  Anything may be discussed or shared that is pertinent to our mutual health concerns, but the underlying theme is we believe we can get well, and detoxifying is one mode. We are open to other useful modes of recovery, too." Yahoo! group.
• Environmental Health Center, Dallas, Texas.  "The Chat/Message Room, a public service of the Environmental Health Center - Dallas, is an interactive area where people suffering from chemical sensitivity and people interested in environmental health issues can network with each other, access information and communicate easily. Director of Patient Education, monitors this board. She is available to chat on line on Thursdays from 4 - 4:45pm Central Standard Time."
• Environmental Health Coalition of Western Massachusetts.  "The Environmental Health Coalition of Western Massachusetts, a member-only group, exists to educate the public about environmental health; to serve the multiple chemical sensitivity (MCS) community; to promote healthier indoor and outdoor air quality; to raise awareness about every day use of common toxic chemicals.
  
  The Yahoo Group "EHCWM" exists to facilitate networking, information-sharing, resource and referral, and general communication among members of the EHCWM."  Yahoo! group.
• Environmental_illness001 · Environmental Illness.  "This group is dedicated to curing / resolving all issues related to Environmental Illness, including but not limited to: Multiple Chemical Sensitivity (MCS), Multiple Food Allergy, Leaky Gut Syndrome, Candida, Epstein Barr Virus, Chronic Fatigue, Fibromyalgia, Heavy Metal Poisoning, Porphyria, etc. We discuss such alternative therapies and diagnostic measures as those espoused by Professor Steven Rochlitz, PhD. at www.wellatlast.com, John Thie, DC (Touch For Health), energy balancing, The International College of Applied Kinesiology (ICAK), Homeopathics, Acupuncture, Bob Beck, kinesiology, ElectroAcupuncture According To Voll (EAV), and even Allopathic and Pharmaceutical methods, when appropriate. Others can be discussed as well, as this list is not all inclusive." Yahoo! group.
• Fibromates Forum.  "Support, education, and validation for those suffering from Fibromyalgia, Chronic Fatigue Syndrome, Myofacial Pain Syndrome, Multiple Chemical Sensitivity, and other Invisible Illnesses."  Yahoo! group.
• Fibromyalgiaandmyofacial.  "To learn more about Chronic Fatigue Immune Dysfunction Syndrome, Fibromyalgia, Multiple Chemical Sensitivity Syndrome, Irritable Bowel Disease, Carpal Tunel, erectible dysfunctiom dysorder, try to venture to http://www.mcilwain.com and read all you can!
  
  It is dental mercury amalgam which debilitated so many. Analyze your metallic taste, swollen salivary glands, severe pain in neck and shoulders, stiffness of joints, snapping joints and severe acidity."  Yahoo! group.
• Fibromyalgia Message Board.  "Supporting each other through tears and laughter, pain and freedom from that pain, good days and bad.....forever more Fibromates! Fibromyalgia robs us of our lives, it destroys our will to live, and controls every waking moment. The only way that we can survive such a life changing situation, is through the love and support of others who understand this ugly, devastating, debilitating, invisible disease. We are misunderstood by doctors, friends, and family because they cannot see our disease. Only through our compounded efforts together can we find those who will research until an answer is found. Thus we stand together, obtaining strength, understanding, love, and support when we are the weakest. Fibromates forever."
• GreenCanary.  "This list is dedicated to a life free from toxic chemicals, and the health problems that they can cause.
  
  People who suffer from Environmental Illness (such as Multiple Chemical Sensitivity, or MCS) are often referred to as "canaries": like the canary in a coal mine, people with extreme chemical sensitivities provide a warning sign that the human body cannot tolerate indefinitely the toxic chemicals we have invented, and with which we have made much of our world unsafe for habitation - not only for us, but for many, perhaps most, other forms of life as well.
  
  Fish kills, mutant frogs, and human cancers all sound a warning in the voice of the canary; but, it is people with Chemical Sensitivity who are made most immediately aware of just how prevalent toxic chemicals are in our modern world.
  
  Here we can come together and share the information and experiences that have taught each of us a piece of the knowledge necessary to survive and thrive, eliminating unnecessary toxic chemicals from our lives, and replacing them with the elements of health and the alternatives offered by the natural world around us."  Yahoo! group.
• HELP-1.  "(HELP-1) Holistic Education Learning Possibilities - The role that nutrition plays in health and learning. Subjects forgenteel debate are: how to make education interesting for
  0 to 99+, enzymes, enzyme deficiencies, nerves, ADD, ADHD, AAT, ALS - Lou Gehrigs Disease, Favism, Narcolepsy, allergies, food reactions, lactose intolerance, antibiotic resistance, pesticides, herbicides, mycoplasma, Gulf War Syndrome, MCS - multiple chemical sensitivity, as a starting place. What role with bio chips have on future illnesses and reactions. Speculation welcome, discuss the message and not the messenger."  Yahoo! group.
• Health & Environment Resource Center.  "Staying Healthy in a Toxic World...Educate the general public about potential environmental threats to physical, emotional, and psychological health and well-being. Present information on ways to recognize environmental factors that may already be causing health problems or that may lead to future ones. Discuss the effects of environmental exposures (from chemical pollutants to indoor air quality and sick school/building syndrome), along with basic information regarding the potential human health impact of radiation, magnetic fields, and genetically engineered food products."
• Immune.  "The main mailing list, started in December, 1990. Over 400 subscribers, around 10-20 posts a day. This is the list for support and information about multiple chemical sensitivities, chronic fatigue syndrome, fibromyalgia, lupus, multiple sclerosis, porphyria, allergies, asthma, and other immune-related ailments. Most subscribers are people with one or more medical condition. Significant others, family, friends, medical professionals, activists, and other interested parties are welcome. Posts are archived. The list is moderated which means all posts must be approved by a member of the moderation team before they will appear on the list."
• Immune Parenting.  "This list is for both men and women who have Multiple Chemical Sensitivity, Chronic Fatigue Syndrome, Fibromyalgia, autoimmune disorders, or other immune system medical issues--or their partners--who are parents, pregnant, trying to conceive, or who are thinking about parenthood.
  
  Our focus here is on natural childbirth and childrearing, alternative medicine, and scent-free/chemical-free living. We are here for parents, and potential parents, who are disabled."  Yahoo! group.
• Immune-partners.  "This is a support group for people whose partners, family members, or friends have environmental illness such Multiple Chemical Sensitivity, Chronic Fatigue, Fibromyalgia, etc. This is not a list for patients ( please refer to immune @ http://immuneweb.org). This is a safe place for people to vent and complain about the difficulties involved in living with people who have environmental illnesses."  Yahoo! group.
• Immune-Survivors.  "This is a special list that is not open to the public. It is for people who are survivors of childhood abuse, domestic violence, rape, or other forms of severe trauma (or their significant others). The list explores the intersections between emotional trauma and immune-system problems. There are around 40 subscribers and 10-20 posts per week. There are no archives. The list is unmoderated (posts are not screened)."
• Informedchoices.  "Activist and support group for those concerned about the misuse of pesticides...Informed Choices is based in Louisiana. The group was created to share information about pesticide issues in our communities and to give support to those individuals who are harmed, injured or concerned about the misuse of pesticides. Members live in other states and countries."  Yahoo! Group.
• Irritable Bowel Disease.  "If you have any doubt what causes IBD look first at long lasting effexts of neurotoxicity!
  
  It is all related to dental mercury fillings, fluorides, and disregulation of neurotransmitters, which causes than Irritable Bowel Disease. Multiple Chemical sensitivity, Chronic Fatigue Immune dysfunction Syndrome, Fibromyalgia, IBD, Carpal tunel, all are different stages of the injury. The Pentagon RAND report addresses the issue of GWS. It is all about mercury isn't it? Than add to it." Yahoo! group.
• LCVeg.  "This is a list to discuss a lowcarb vegetarian diet. You are welcome to join if you have an interest in both these things, though you don't have to be practicing either. People who eat moderate or high carb diets can use this list to find out more about lowcarb. Meat-eaters can join to get ideas for occasional vegetarian meals. All recipes and meal suggestions should be both vegetarian and lowcarb though, even if your diet is not. This is a not a place to debate the worth of lowcarb or vegetarianism. Posts are archived."
• MCS-CanadianSources "MCS-EI Canadian support, information and resource exchange for those with multiple chemical sensitivity.
  
  MCS-CanadianSources is a support, information and resource exchange for those living and coping with Multiple Chemical Sensitivity (MCS), Environmental Illness (EI), or Chemical Injury (CI). We also discuss invisible illnesses as they relate to chemical sensitivities, for example: Myalgic Encephalomyelitis, Fibromyalgia, Lupus, Asthma, and Allergies.
  
  Since January 2001, we have offered support to Canadians dealing with the challenges of living and coping with MCS/EI/CI. Although our focus is Canadian, our membership base is worldwide. We also welcome significant others, family, friends, medical professionals and other parties interested in the issues and challenges we face.
  
  Locating products within Canada is often a trying experience and purchasing out of the country can be an added financial burden due to unfavourable currency exchange rates, the added costs of duty, and often unaffordable shipping costs. As well, according to the Environmental Illness Society of Canada, in 1999 the US had 1200 EI physicians while Canada had 25. Locating these products and services and accessing them can be a difficult challenge and so we share our knowledge with each other so that all may benefit."  Yahoo! group.
• MCS-CI-Hope.  "Welcome to MCS-CI-Hope, an un-moderated discussion forum for MCS (Multiple Chemical Sensitivity), CI (Chemical Injury), TILT (Toxicant-Induced Loss of Tolerance) and EI (Environmental Illness). On July 1, 2003, MCS-CI-Hope became an archive for MCS-CI-Hope2, an invitation-only group that has much larger archive space." Yahoo! group.
• MCS Free-for-all.  "A no-holds-barred MCS discussion group. Political discussions welcome."  Yahoo! group.
• MCS Friends Free Public Access.  "This is a new free 'open to the public' forum for anyone curious about MCS Friends, a support group for Multiple Chemical Sensitivity based in Michigan.
  
  We invite everyone to join this forum to learn more about MCS Friends and "everyday toxic chemicals." While public, memberships in this forum are moderator-approved, and messages will be moderated. Anyone can view the messages posted here - that is the purpose. Should you accidentally post something you wish to be personal, the moderator can delete it for you.
  
  (Current members of MCS Friends: There is a separate and private yahoo group for members of MCS Friends.)
  
  Thanks for your interest. You WILL learn something here. Remember: We all share the air."  Yahoo! group. 
• MCS-HeightenedSensesNetwork.  "Multiple Chemical Sensitivity- Heightened Senses Network is an online chemical injury support group and forum for those who have been chemically injured and suffer from any of the following chemically related illnesses: Multiple Chemical Sensitivity (MCS), Myalgic Encephalomyelitis (ME), Environmental Illness, Sick Building Syndrome, Toxic Injury, Fibromyalgia, Chronic Fatigue Syndrome (CFS) and Gulf War Syndrome among many other forms of chemical injury.
  
  MCS is a disorder triggered by exposures to chemicals in the environment. Individuals with MCS can have symptoms from chemical exposures at concentrations far below the levels tolerated by most people. Symptoms typically occur in more than one area in the body, such as the nervous system and the lungs. Exposure may be from the air, from food or water, or through skin contact. The symptoms may come and go with exposures, though some individuals may have delayed reactions. As MCS gets worse, reactions become more severe and increasingly chronic, often significantly affecting bodily functions. (Envionmental Illness Society of Canada).
  
  Sensitivity to fragrances, dizziness/vertigo, the onset of sudden bizarre allergies, muscle aches, memory loss and the inability to concentrate are some of the first signs of chemical poisoning. Check out the sidebar titled What Is MCS for a listing of additional symptoms and signs that you may be chemically injured. Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group." 
• MCS-NAPH.  "This group is the newsletter of The National Association of the Physically Handicapped, Chemical Sensitivity Awareness Chapter of Northeast Ohio. We offer support, education and networking for persons disabled by Multiple Chemical Sensitivity or Environmental Illness (EI) and related disoders such as Fibromyalgia, CFIDS, Gulf war Illness, etc."  Yahoo! group.
• MCS-Survivors.  "This group concerns Multiple Chemical Sensitivity and
  how people are coping with it."  Yahoo! group.
• Mcsarizona.  "This is a discussion and information list for Arizonans who have multiple chemical sensitivity. This group will be a place to talk about our problems, solutions, journeys and health issues.
  
  Anyone is welcome to join, but as group owner I will be posting information about issues that affect people in Arizona, including West Nile Virus spraying and local anti-smoking and pollution issues."  Yahoo! group.
• Midwest Oasis MCS E-mail Support.  "Midwest Oasis MCS E-mail Support is the e-mail arm of the Midwest Oasis MCS Support Group. Although people from all geographical areas are welcome to join, a partial focus of this list will be discussion of regional issues affecting MCS (Multiple Chemical Sensitivity) in Missouri and other Midwestern states."  Yahoo! group.
• OldDominionMCS-FMS_CFIDSsupportgroup.  "There are so many of us in the Old Dominion who have Fibromyalgia, Myofascial Pain Syndrome, and other related conditions like CFIDS, Gulf War Syndrome (GWS), ES, and Multiple Chemical Sensitivity. I wanted to create a place that could provide gentle and caring support to those of us who live in Virginia, and elsewhere. Other clubs are too big, and people tend to get lost in them."  Yahoo! group.
• Overactive Dysautonomia.  "Dysautonomia is when the autonomic nervous system (ANS) fails to work correctly, causing problems with unconscious regulation of multiple body systems and functions. Many doctors are familiar with forms of dysautonomia in which the ANS is underactive, but the opposite problem can also occur: the ANS can be overactive. This type of ANS dysfunction is rarely even recognized by doctors, because it has never acquired the official status of a specific disease.
  
  A person suffering from overactive dysautonomia may have overactivity of the sympathetic branch of the ANS, causing symptoms such as hypervigilance, insomnia, anxiety, panic attacks, tachycardia, muscle spasms and pain, irritable bowel, and excessive vasoconstriction and oxygen deprivation anywhere in the body. Other times, the parasympathetic branch of the ANS may be overactive, causing fatigue, weakness, orthostatic hypotension, lightheadedness and dizziness, etc. A person may alternate back and forth between these two states, as the ANS constantly overreacts and struggles to maintain homeostasis. Often, people with this disease have a very difficult time dealing with stress, and normal stimuli of daily life (lights, noises, smells, temperature changes, work demands, emotional conflicts) affect them in exaggerated ways.
  
  People who have been diagnosed with fibromyalgia, chronic fatigue syndrome (CFS), multiple chemical sensitivity (MCS), reflex sympathetic dystrophy (RSD), atypical migraine, post-traumatic stress disorder (PTSD), various mood disorders, or have been unable to find a diagnosis because they have "too many symptoms," may in fact be suffering from overactive dysautonomia. For those who suspect this is the root cause of their health problems, this group is to share experiences and ideas, give each other support, and help promote awareness and research into this disabling neurological condition that has not yet gained recognition in the medical community. Doctors and researchers are welcome."  Yahoo! group.
• Multiple-Chemical-Sensitivity.  "This group was created for uncensored discussions about multiple chemical sensitivity (MCS) and environmental illness (EI)."  Yahoo! group.
• Our Voices.  "A forum set up to bring about awareness of FIbromyalgia and its related illnesses. This forum is the headquarters of a new non profit organization. A place to kick around ideas on how best to get awareness out in our communities."  Delphi Forums.
• San Francisco Bay Area mcslist.  "Classified ads for people with MCS (Multiple Chemical Sensitivity) in the San Francisco Bay Area. Find housing, jobs and make connections. Database of local resources."  Yahoo! group.
• Southwest Environmental Health Association.  "We are a support group for Chemically Sensitive Individuals. We are primarily located in the Phoenix, AZ area. We are a regional branch of H.E.A.L. (Human Ecology Action League) This branch now covers Arizona, Utah and New Mexico but anyone is free to join. We cover all topics and aspects of living with (MCS) Multiple Chemical Sensitivity, also known as (E.I.) Environmental Illness, (C.I) Chemical Injury.
  
  We are here to provide support, sharing of information, understanding, friendship and compassion. Please feel free to join us if you live outside Arizona as well." Yahoo! group.
• ToxLaw.com-MCS/MCSS Chatboard. 
• ToxLaw.com-Toxic Torts Chatboard. 
• Washington State MCS Network.  "WSMCSN is a decentralized network of groups and individuals in Washington State who share information about the issues of Multiple Chemical Sensitivity(also known as Chemical Intolerance). Please read 'Understanding Chemical Intolerance.'  http://wsmcsn.s5.com/understandci.htm."  Yahoo! group.   

Multiple Chemical Sensitivity or MCS Main Web Page