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Lyme Disease Forums

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Also see Lyme Disease.

Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

  • ALS-Lyme List.  "An information-sharing resource for PALS (People with ALS) who have also tested positive for chronic Lyme and related infections, and for their caregivers, friends and health-care professionals."  Yahoo! group. 
  • ArizonaLyme.  "This is an email group for members of the Arizona Lyme Disease Support Group. The purpose of this group is to share information among our members. We also invite people from neighboring states or those considering a move to Arizona to join."  Yahoo! group.  
  • BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group.
  • Butte County Lyme Disease Support Group.  "This site is created to assist those in Butte County CA who are suffering from Lyme and other tick-borne diseases. It is open to all who have been to our meetings, and those who are too ill to attend. I hope you will find this site useful and informative, and come back often."  Yahoo! group.
  • CFS-FM_INFO.  "An announcement-only information source for CFS/FM clinicians, researchers, support group & advocacy leaders worldwide... CFS-FM_INFO’s goal is to save busy physicians, researchers and support group & advocacy leaders the time and effort involved in keeping up-to-date by forwarding them only the most compelling medical and research-related information about Chronic Fatigue Syndrome, Fibromyalgia, Lyme Disease and other related disorders, culled from the numerous CFS/CFIDS, FM and Lyme Disease listgroups, websites and other online and print sources. The member list is private (i.e., available only to the listowner). Archives are available to members only. As an announcement-only service, this list is meant to supplement the many superb CFS/FM/Lyme lists in which members may discuss issues & offer encouragement to one another."  Yahoo! group.
  • CFS / FM or Lyme Disease.  "This group is to help educate the public about Lyme disease and other tick borne diseases, especially those diagnosed with Chronic Fatigue Syndrome and Fibromyalgia. Lyme disease is now epidemic throughout the world and is very difficult to diagnose and treat due to the ignorance and politics of the medical community and misinformation.

    This group is meant to be a sympathetic and informative group for those who want to learn about a very REAL possibility. Lyme Disease is most often misdiagnosed as CFS, FM, Alzeimers, Multiple Sclerosis, Lupus, etc. Lyme is called "the new great imitator" for this reason. Please see the Links and Files sections for more info."  Yahoo! group.
  • CFS-Mycoplasma · This list discusses treatments for Mycoplasma,Chlamydia, Rickettsia and related infections.  "List focuses on Systemic Mycoplasma Infections as well as Chlamydia, Lyme Disease, Rickettsia, Brucellosis, Staphylococcus, Streptococcus and other related infections in found in patients with Gulf War Illness, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, Fibromyalgia, Lyme Disease and autoimmune diseases. However, this is primarily a mycoplasma list. Therefore, only posts that include the word mycoplasma will be a approved for posting. Members discuss treatments, medications, health, symptoms and updated research. It is a support list, we try to help patients with their treatments. We give referrals to physicians by email requests and laboratories' addresses are in the Database section. The list is run and owned by the national nonprofit organization the "MYCOPLASMA REGISTRY for Gulf War Illness and Chronic Fatigue Syndrome." Political discussions are allowed on our list, for patients and by patients, but may not dominate the list. Our first goal is to help fellow patients with their treatments. Not allowed are: Insults, Profanity, Inappropriate and/or Hateful Language, Off-Topics, Spamming, Advertising, Business Soliciting or Marketing of Any Kind, or Exploitation. List owners: Leslee and Sean Dudley. The "MYCOPLASMA REGISTRY'S On-Line Registration Survey Form" can be found at: "American Gulf War Veterans" http://www.wandasimages.com/micop.htm The MYCOPLASMA REGISTRY REPORTS, updated vital information and news are distributed by our announcement only list."  Yahoo! group. 
  • ChronicIllnessHouse.  "Excellent patient education material on Chronic Illnesses, Support, Information on Hepatitis, Fibromyalgia, Chronic Fatigue Syndrome ,CFS/FM, Lupus, Lyme, Multiple Sclerosis, Chronic Pain and always adding other Illnesses.  Always get the advice of your M.D.!!..
    I have 3 Chronic Illnesses, many like myself they are Overlapping Diseases.
    There's Some of the best Info on the Web that has accumulated and is always being added to with new posts..!,
    You can get these posts Emailed to you in a daily digest or individual or not at all just post and read online...
    I hope to see you join Our online Family and we get to help each other...Along with messages there a photo section, Links, calendar, see what other Members are online and Chats...
    I also have many websites of my own and an Avatar Chat Palace and would be glad to teach anyone about it ..and the Chronic Illness House Main site

    Calling All Angels to Guide us on Our Journey."  Yahoo! group.
  • Chronic Illness Housing Community.  "A list group for individuals hoping to envision and build a real-life community for people with CFIDS (Chronic Fatigue Immune Dysfunction Syndrome), MCS (Multiple Chemical Sensitivities), FMS (Fibromyalgia Syndrome), GWS (Gulf War Syndrome), chronic Lyme disease, and other illnesses. Those with a serious interest in living in a healing environment with others who are sick can join to talk about possible locations, needs, practical concerns, timelines, and building/rental issues. This community will be queer-friendly and open and welcoming of all races and ethnicities, etc., and will not tolerate bigotry of any kind. It will also set up policies to make it a safe and healing environment for the illness groups represented, with set policies restricting use of chemicals and scents that would harm those with chemical sensitivities. Creative people -- artists, writers, visionaries -- are encouraged to join."  Yahoo! group.   
  • EuroLyme.  "Welcome/Velkommen/Willkommen/Bienvenue/Bienvenidos/Benvenuti to EuroLyme the European site where patients and professionals can find friendly support and reliable information about Lyme and other Tick-borne Infections. English is the primary language, but moderators already support the languages illustrated above. We hope some day to support all European languages so that YOUR questions can be answered in your native tongue
    Charity details http://www.lymediseaseaction.org.uk/."  
  • Finger Lakes Lyme Disease Support Group.  "The Finger Lakes Lyme Disease Support Group meets approximately every month to provide support for Lyme Disease patients and their families.

    This mailing list will carry announcements of meetings as well as provide a means for discussion among our members between meetings.

    For questions about the mailing list, please contact Joy Veronneau, joy@lightlink.com.

    For questions about the Finger Lakes Support Group, please contact Marianne, bigpapa@clarityconnect.com."  Yahoo! group.
  • FL-LymeDiseaseNetwork.  "This site is for Floridians interested in learning more about Lyme & Other Tick-Borne Diseases. I AM RE-ACTIVATING THIS FORUM due to the increase of infections of lyme disease here in Florida. REGISTRATION REQUIRED. If you desire to receive the Florida Lyme Disease Network E-newsletter, please email me privately at Loveyonlyme@aol.com. The Lyme Leading The Lyme."  Yahoo! group.
  • Flying With Fibro.  "Many people that have Fibromyalgia or related chronic illnesses are using the Flylady system to complete housework and dejunk. This system helps people with fibro, CFS, CFIDS, ME, myofacial pain syndrome, lyme disease, etc to deal with all the problems associated with this disease including brain fog, fatigue, and muscle aches. Although the fly system works for most people, fibromites & PWC may need extra support as we attempt to manage our households. Issues of pacing, home management with organization, and taking care of our bodies will be discussed and supported. Sufferers and their support network are all welcome. We have members from several countries, cultures and religions - all are welcome, so please consider this when posting.
    Happy flying with fibro...."  Yahoo! group.  
  • Health-alternatives.  "Want to add a list for people who are interested in alternative health care for people with Fibromyalgia, CFS, and Lyme etc. I hope people can bring ideas, remedies, types of health care that has help them cope with the struggles with these diseases. I am interested in health spa type products that help ease muscles, relieve tension, increase cellular immunity, and are good for things helping pain. Also, aromotherapy is a great, natural adjunct to health."  Yahoo! group.  
  • ImmunicsBuddies_Lyme.  "Hi, I'm Frannie. We're saving the world by teaching people that they can cure and how to cure disease and have fun doing it.

    People live because we and the people they love insist that they do so. If people suffering with Lyme disease can personally interact with others who are using immunics to cure or control it, and coach one another, they will not only become asymptomatic within a few months, but will form a revolutionary cadre that will go on to eradicate all diseases from humanity, because this is the natural tendency of anyone who becomes able to cure or control any disease.

    If you have Lyme disease and wish to cure it, wish to prevent it, wish to help a friend cure it, are already doing so, or are an immunics master who has cured other things and wish to help people who have Lyme disease, your posts are welcome in this group!

    Immunics was defined by Dr. Robert Casola as 'the conscious, immediate, and intentional control of the physiological and psychological aspects of your immune system and the use of your control to do methodical immunological actions that effect cure.'"  Yahoo! group.
  • Long Island Lyme Disease Association.  "The Long Island Lyme Disease Association is a support group for people with Lyme and related tic born diseases.

    Support group meetings are held on the third Monday of the month at 7:30 PM in Nassau County, Long Island, New York. This mailing list will keep you posted on any changes in our meeting time or location as well as special events." Yahoo! group.
  • LoveyOnLyme.  "Discussion group for those who suffer from Lyme Disease & Coinfections."  Yahoo! group.
  • Lymeaid · Lyme Aid - A support group for Lyme patients.  "Need a place to share your frustration and fears about Lyme Disease? Need to feel a bit of encouragement or want to inspire and uplift another sufferer? This is where you are among others that understand your plight! Whether you are confirmed Lyme or just suspect Lyme, you're welcome here."  Yahoo! group.  
  • Lyme Aid.  "Lyme Aid was founded in September 1998 to provide a way for Lyme Disease victims to come together to share their knowledge of this disease and to support one another. This list has become a wonderful place to meet many different Lymies from all over the world and share experiences of all different types relating to Lyme disease. This is a very active list with over 950 members and can average 50 messages a day. If you want to discuss Lyme disease, please join us at Lyme Aid today."  Yahoo! group.
  • Lyme_Aid.  "Information and support concerning Lyme disease will be provided to the members of Lyme_Aid."  Yahoo! group.
  • Lyme and Related Disorders UK.  "Purpose; to bring together those with knowledge of, experience of, or difficulties with Lyme and related disorders in order to promote awareness of tick-borne infectious diseases, to provide a forum to obtain help for sufferers or those who suspect they may be infected, and to promote progress in diagnosis, treatment and rehabilitation for those affected.

    We also aim to raise awareness of these issues among health professionals, in particular GPs, Infectious Diseases specialists, Paediatricians, Rheumatologists, Neurologists, Public Health specialists and Occupational Medicine specialists, amongst others, and to see public funds made available for prevention and treatment of this serious and very debilitating disease."  Yahoo! group.
  • Lyme-and-rife · Fighting Lyme Disease with Rife Machines.  "This group is about fighting Lyme Disease with rife machines. Many people have received benefit from treating their Lyme Disease with rife machines, as you can read on the User Reports page. We also discuss other treatment modalities which we have found to be more useful than conventional (and even extended course) antibiotic therapy. Our group is growing, with members representing many medical disciplines including naturopathy, homeopathy, Ph.d researchers, leading rife machine researchers, and more. Please see our website, Rife Machines and Lyme Disease, for more information. A Lyme Disease / Rife Machine paperback book will be published some time in late 2004, check back for details."  Yahoo! group.
  • Lyme-and-rife-sharing · Sister-Group to Lyme-and-rife.  "This group is an extension of the Lyme-and-rife group:

    http://health.groups.yahoo.com/group/Lyme-and-rife/

    This extension group was established to provide a separate forum for people to discuss and arrange the sharing of rife-like devices. Those who have a device they wish to share, and those who are seeking a device to share, should participate in this group. Regular discussion of rife-like machines and other modalities should not be discussed here. If you wish to discuss these other topics, please visit:

    http://health.groups.yahoo.com/group/Lyme-and-rife/."  Yahoo! group.   
  • Lyme Aid Documents.  "Lyme Aid Documents is a compilation of information previously posted on Lyme Aid. Because Lyme Aid generates a lot of personal dialogue, Lyme Aid Documents was created so that there would be a concise place where Lyme Aid members (and others!) could go to search for information previously posted on Lyme Aid."  Yahoo! group.
  • Lyme Aid Off Topic.  "This list is for members of Lyme Aid (and others) to discuss anything not related to Lyme disease. This is a great place for posting about issues that concern us personally, that have nothing to do with Lyme, including other diseases, humor and political issues. This list is a great way for relationships formed in Lyme Aid to continue to grow outside of the 'Lyme Light'."  Yahoo! group.
  • Lymebee.  "Bee venom therapy for lyme group. BVT is used for a variety of illnesses. Some people claim that the honey bee has helped with their symptoms. This group is to share personal experiences. Please consult with your physician before any Bee venom therapy treatment."  Yahoo! group.
  • LymeData.  "This is intended to be a group for the posting of medical, scientific, legal, and legislative data regarding Lyme Disease. It is not a support group nor an activism group.

    Membership is by application/invitation.

    All members may post."  Yahoo! group.  
  • Lime Discussions.  Provided by the Canadian Lyme Disease Foundation.  
  • Lyme Disease.  "This is an open forum support eGroup for persons affected by "Lyme Disease." This support eGroup has been established for patients, family members, medical professionals and rare disease researchers interested in sharing information and/or support for affected persons."  Yahoo! group.
  • Lyme Disease and Me.  "A great place for support for those suffering from Lyme Disease or those who have family or friends suffering. A FREE support group for hugs, triumphs, trials and information."   
  • Lyme Disease Camp.  "This camp is designed to help keep people informed about upcoming Lyme disease retreat/camp weekend/weeks. And to give those interested input in the decision-making process for upcoming weekends/weeks."  Yahoo! group.
  • Lyme DiseaseCo Infection Connection.  "This group is for anyone suffering from Lyme Disease and or it's CO-infections to share stories, knowledge and lend support when needed. Friends and family are welcome too."  Yahoo! group.
  • Lyme Disease Info.  "Welcome to Lyme Info! This email list has been created to supplement the website http://www.LymeInfo.Net, which has been serving the online Lyme disease community since 1997. The moderators will provide periodic announcements of the latest news coverage on Lyme disease, including scientific items, upcoming events and important action items, without the conversation found on email support and discussion lists.
    In addition to Lyme disease, messages will also include information about other tick-borne illnesses.

    Messages will be sent daily, mostly by group moderator Rose. The number of emails to the list are generally between 15-25 emails per week, depending on "traffic" in the news.

    We hope that you find this list informative."  
  • Lyme-Disease-NJ.  No description available.  Yahoo! group.
  • Lyme-disease · Progress of the disease and possible cures.  "Progress of the disease and posible cures."  Yahoo! group.
  • LymeDiseaseStories · True Stories about Lyme Disease.  "I am on a mission. I want to get as many true life stories from people with Lyme disease, and publish the stories in the book. Than we can give the profits to a Lyme organization. Stories about related illnesses can also be shared. This would be a great way to tell our stories to the whole world, and to no longer be silent. Please share with me your stories."  Yahoo! group.
  • Lyme Family, lymefamily.  "Friendly group, sharing their fears, cheers, knowledge and questions about Lyme Disease with each other. no flaming. We welcome information from the Lyme community, but this is NOT the place for controversy or attacking the politics of lyme. Information on hearings, marches and letter writing campaigns are usually provided as they are to all Lyme groups, but that is the extent of it.
    We have Lyme and are interested in our everyday experience of living with lyme. We all support each other, living with a disease that has radically changed our lives. many of us are late diagnosed and disabled from the disease. some are still working, some with children. either way, we all need support. And more important we all need to laugh! so happy news is encouraged."  Yahoo! group.
  • Lyme-Healing.  "Welcome! My name is Joseph, I started this Group to help people with the Lyme condition. Exploring new and old healing modalities that one can use easily, safely and at a reasonable cost. The focus of this Group is to explore alternative healing methods to support your present healing and medical protocol. It is NOT intended to be medical advice or replace your doctor or your medicine that you are taking. You should always consult with your doctor before making any changes in your medication or adding to your medication or if you think that you have been bitten by a tick.

    The areas of discussion will focus on energy healing, spirituality, gemstones and crystals, elixirs, products, life style, diet and nutrition, meditation and prayer. Your sharing and positive support will be of great help to those in need.

    I do energy healing work which has been very helpful in this area, I am currently working with a healing and balancing energy called The Life Force Matrix. If you would like more information or are interested in learning more about this type of healing please visit my site at www.lifeforcematrix.com or email me at lifeforce@bigplanet.com."  Yahoo! group.
  • Lyme in autism.  "discussion on our children are testing positive for Lyme and mycoplasma who have autism or add or seizures. Please join and contribute your stories, and your healing messages to our families who are suffering. Typically, the whole family is infected."  Yahoo! group. 
  • Lyme_Info.  "Information about Lyme disease will be provided to the members of Lyme Info. Most information will be provided by the members of this group." Yahoo! group. 
  • Lyme_Information.  "Information about Lyme disease will be provided to the members of Lyme_Information by members and moderators."  Yahoo! group.
  • Lyme-information · Archive of TBD articles.  "Knowledge can help empower us to regain our health. The objective for this list is to educate and support while maintaining a clean archive of reports, journal entries and documents of research relating to Lyme disease, Erhlichiosis, Babesiosis and other tick-borne diseases. Be sure to take a look at the "Links". Please share your concerns, questions, laughs and inspirations with us. Every few days I will go through the posts, delete the personal posts and responses. Archiving only the posts that are informational and making sure they have clear subject titles will create an archive that is easy to search and browse. Check out all the great information in the archive! Welcome."  Yahoo! group. 
  • Lyme-mild hyperbaric.  "This group is for those interested in discussing the use of mild hyperbaric, associated oxygen and heat therapies for those with lyme disease.
    There have been indicators and experiences that mild hyperbaric may be able to help people in the recovery from Lyme disease.

    We will be discussing the protocols that people have used and the results they have had as well as share the results that people are having in the group that are using mild hyperbaric.
    The opinions and experiences of those sharing on this site are not meant, nor to be construed as an endorsement or suggestion that anyone engage in these therapies."  Yahoo! group.
  • Lyme-naturalhealthcare.  "Welcome All... in this group, we will be discussing and sharing natural health care methods for helping us to recover from Lyme disease and related disorders.

    INCLUDING: Herbs, energetic methods, ozone, homeopathy, oxygen, sanum remedies, neurotransmitter balancing, parasympathetic recovery, detox, support, building emotionally and physically, color, chi gong, meditation, scenar, LED and laser, Heavy Metal protocols, ect...

    There is also a prayer list for people desiring spiritual
    support."  Yahoo! group.
  • Lyme On A Dime.  "A general support group for Lyme patients. Facilitating the spread of Lyme information through an email group."  Yahoo! group.
  • LymeRICK.  "LymeRICK = Lyme borreliosis and Related Infections Center of Knowledge.

    This group WAS intended for SCIENTIFIC discussion about tick borne infections, and the group WAS functioning very well, until it became overflowed by many crosspostings from other discussion groups. LymeRICK's aim was indeed to collect knowledge about TBI, but it's tedious for a busy person to have to handle and sort out the exact same messages 4-5 times ! - and after the creation of the International Lyme and Associated Diseases Society = ILADS discussion group, and the majority of LymeRICK members, including myself, joined ILADS, where the same scientific issues were discussed, I no longer found need for the LymeRICK discussion group and stopped enrolling new members into it. My group had outlived itself and was replaced by something better :)))
    LymeRICK group files and links have, however, been kept open for all and I have updated some of the material, since much of what is presented here, could still be useful. The material presented here may eventually be duplicated / moved to another website."  Yahoo! group. 
  • Lyme Resource Group (Marin County, CA).  "The Lyme Resource Group (Marin County, CA) is "dedicated to actively pursuing traditional and complementary approaches to overcoming Lyme disease and all of its associated anomalies through research, sharing information and documenting results." Meetings are held the second Thursday of the month, venue varies and is posted via email. This forum provides a source for members to post information on upcoming events, initiate carpools, and post files or articles shared in meetings."  Yahoo! group. 
  • Lyme-Rife · Lyme-Rife Discussion.  "Discussion Group for people treating Lyme disease with Rife/type frequency machines."   Yahoo! group.
  • Lymestrategies.  "Lyme Strategies is a site dedicated to the ongoing research of practical approaches to Lyme infection. It is based primarily upon the the approach described at the Lyme Photos website: http://www.lymephotos.com/index.shtml.

    Though the main thrust of the site is to forward research on this approach, other adjunct approaches and strategies are also examined as regards nutritional, nutraceutical, bio-electric, herbal, holistic, etc.."  Yahoo! group. 
  • Lymestudents · Students with Lyme.  "This is a group for students, especially college students (undergrad and graduate) who have Lyme disease or other chronic illnesses. I want this to be a support forum for the unique issues associated with trying to battle a chronic disease while moving forward with your life. This should be a positive place for helpful suggestions and together, maybe we can give each other a little more hope."  Yahoo! group. 
  • LymeTeens.  "LymeTeens is a members-only group for adolescents with Lyme disease. Here you can discuss your problems, fears, and successes with your peers. This group is administrated by the Lyme Disease Association of Southeastern Pennsylvania, Inc., which is dedicated to helping our friends in the Lyme community throughout the U.S. LymeTeens has professional health care professionals as advisors who may comment from time to time."  Yahoo! group.  
  • Lyme Tampa Bay Support Group.  "Meet others to discuss treatments, options, and support for this growing Lyme problem in Florida. Open to all patients, family, caregivers."  Yahoo! group.
  • Lyme Warriors.  "This is a list for young people suffering from Lyme disease. Anyone who wants to communicate about the concerns involved with this disease, and it's specific effects on young people, are invited to join Lyme Warriors."  Yahoo! group.
  • Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.    
  • ME-CFS-FMS_infections · ME CFS FMS and hidden zoonotic infection.  "The purpose of this group is to highlight the need for patients with ME/CFS/FMS to make sure they are adequately tested for hidden zoonotic infection in particular Borreliosis/Lyme Disease. Many people previously diagnosed with ME/CFS/FMS are finding out that they do in fact have hidden infections which is what may be either causing their illness or keeping them ill. The problem is that it can be very difficult to find a Doctor who will order accurate tests or be able to interpret the results and order effective treatment. We can't promise all the answers here, but may be able to point you in the right direction by sharing our experiences and providing links and files with the information you need to make an informed decision. I am not an expert and do not have all the answers, but I am keen to highlight this issue. Lack of testing and identification of hidden infection has affected the health of myself and my family for many years. We hope that we are now on the road to recovery and would like to see others helped in the same way. Victoria."  Yahoo! group.
  • MycoplasmaRegistry · GWS, CFS, FM, LD & Autoimmune Diseases.  "For GWS,CFS,FM,LD,autoimmune diseases. FREE Brochure: "How to Get an Accurate Polymerase Chain Reaction(PRC) Blood Test for Mycoplasmal and Other Infections with a List of International Laboratories"© by Sean and Leslee Dudley is emailed to new subscribers. Its updated with current information and the new version is posted to this list each month.

    This is an announcement list for the distribution of MYCOPLASMA REGISTRY REPORTS and updated medical information and news for people interested in diseases that have Systemic Mycoplasmal Infections (ICD-10-CM code: Mycoplasma A49.3) as the cause or cofactor in: Gulf War Syndrome, Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Fibromyalgia, Lyme Disease, Rheumatoid Arthritis, Systemic Lupus Erythematosus, Scleroderma, Sjögren's Syndrome, Amyotrophic Lateral Sclerosis, Multiple Sclerosis, Asthma, Respiratory Distress Syndrome, Pneumonia, Bronchitis, Inflammatory Bowel Disease, Sarcoidosis, Wegener's Granulomatosis, Histiocytic Necrotizing Lymphadenities "Kikuchi's Disease", Leukemia, Alzheimer's Disease, Autism, Infertility, Stevens-Johnson Syndrome, Acquired Immune Deficiency Syndrome."  Yahoo! group.  
  • Parents of Lyme Kids (PoLK).  "Children with Lyme disease, and their parents, face unique challenges and situations. Parents of Lyme Kids allows a place for parents to come together and discuss these challenges and situations, to find support among others and to seek advice from those who 'have been there'."  Yahoo! group.
  • Puget Sound Lyme.  "We are a private discussion group for Lyme Disease and Tickborne Illness for the Puget Sound Area in the State of Washington.

    We also have a State of Washington Discussion Group and Web Page

    Online Support: WA-Lyme@yahoogroups.com
    Web Page: http://groups.yahoo.com/group/WA-Lyme
    List owner: WA-Lyme-owner@yahoogroups.com."  Yahoo! group.
  • Rhode Island Lyme Disease Victims.  "A support group message board for Rhode Island victims of Lyme disease. A place to ask questions and contact othe local victims to get together for rides to the doctor. Also a home page for the Warwick Support Group to post meeting times and information."   Yahoo! group.  
  • Rife_Uncensored · Secrets of Rife Therapy and others.  "Rife therapy, Hulda zappers, Beck blood electrification, Magnetic Pulsers, etc. Read all the miraculous success stories for treating cancer, depression, CFS Chronic Fatigue Syndrome, Herpes, AIDS, HIV, Lyme, and parasites that have been posted in other lists by the people that actually did them, and now re-posted here where they cannot be censored by special interests. All info is excerpted from other people's posts in other lists, so this will be a read-only list."  Yahoo! group.    
  • Robynn's Lyme List.  "I provide current and/or relevant Lyme disease information almost every day to the members of Robynn's Lyme List. (The season will dictate how much information is being published.) Currently I have over 1400 members including many doctors and support group leaders from around the world as well as state and national legislative members from the U.S. This list is great for people who do not have a lot of time, yet still desire to stay on top of the latest Lyme disease information. Most of my members find this information invaluable, yet never overwhelming.

    This list was originally started by private email in 1997."  Yahoo! group.
  • Santa Cruz Lyme Disease Support Group.  "There is Lyme disease throughout Santa Cruz County. This group is for friends and family of those affected, as well as for the general public, as a resource to learn about Lyme and other tick-borne diseases in California, such as Babesiosis, Ehrlichiosis & Bartonella, all of which are in Santa Cruz County. We have a monthly meeting in person at the Aptos Library as well as two online meetings monthly, those being one political for those interested in Lyme activism and one as a support group for the newly diagnosed and those with chronic Lyme issues. Ehrlichiosis has been documented at 13.3% in ticks within MUNICIPAL LIMITS of SC. California Babesiosis is WA1 and will tend to test negative on the standard Babesia (Microti) test. Bartonella is an old infectious disease with a newly recognized vector- the tick. A few of these diseases may be transmitted in one tick bite and there may be no rash of any kind. Many tick bites go un-noticed. People can test negative for Lyme but still have it and even be negative on spinals. Any questions feel free to email Sarah Weiss at CaliforniaLyme@cs.com or see our web page at http://www.angelfire.com/punk/lymedisease.  You are not alone if you have Lyme in Santa CRuz- welcome to our group." Yahoo! group.
  • Singles with Lyme.  "Singles with Lyme is a group for single people who have Lyme disease to gather and interact. The issues people with Lyme disease face, especially when dealing with relationships, can be unique. This group intends to be a place where people can discuss these unique challenges." Yahoo! group.
  • Sonoma County Lyme Support.  "Welcome to Sonoma County Lyme Support!

    This forum is for those in Sonoma County, CA who are dealing with tick borne illnesses, including Lyme, Babesia, Ehrlichia, and Bartonella. This is a place to share resources, experience, and support. If you are just considering a Lyme diagnosis as a possibility, please contact Sonoma County Lyme Support at lymeinfo@sonic.net, and we will be happy to help you with referrals.

    We are a private discussion group. Please don’t be offended if we ask some questions before we add you to the list. We pre-screen all new members to assure privacy, as we strive to be a SAFE place to discuss personal information.

    Be sure to check out the links (open to the public) and the files for LOTS of information."  Yahoo! group.
  • Texas Lyme Support Group.  "Advice and support for patients with Lyme Disease in Texas."  Yahoo! group.
  • Upstate New York Lymies.  "This group is for all people with Lyme Disease who are located in upstate New York."  Yahoo! group.
  • Vermont Lyme Information Resource.  "Support for people in Vermont and adjacent areas who have Lyme and other tick-borne diseases. A friendly place to get to know one another and share our experiences and information. Though a small group, we are very active! To provide privacy for our participants, we require approval of new members, but we are open to all. No commercial messages. Sponsored by Vermont Lyme Information Resource, which provides information about tick-borne diseases to both the lay public and the medical community in Vermont."  Yahoo! group.
  • Voices Of Lyme.  "Voices Of Lyme will evolve as members join and we as a group decide how best to use this list."  Yahoo! group. 
  • Washington State Lyme Disease.  "We are a private discussion group for those who have Lyme Disease or other Tickborne Disease(s), commonly referred to as Lyme Disease Co-Infections."   Yahoo! group.

 

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