|
|
Forums
If you join one of these support groups, please mention
that you found their group through Medconsumer.info.
-
ALS-Lyme List. "An information-sharing resource
for PALS (People with ALS) who have also tested positive
for chronic Lyme and related infections, and for their
caregivers, friends and health-care professionals."
Yahoo! group.
-
ArizonaLyme. "This is an email group for members
of the Arizona Lyme Disease Support Group. The purpose of
this group is to share information among our members. We
also invite people from neighboring states or those
considering a move to Arizona to join." Yahoo!
group.
- BeingSick · A global community of loving people who
understand what its like to be sick or care for a loved
one. "We are a community of loving supportive people
who understand what its like to be sick. We live with
illness, injury, disability, or care for those that do.
This group is a place where you are free to be yourself.
Share your frustrations about being sick, friendships,
family, and just about anything! We are the family who
understands when no one else does! We live your life too!
You are welcome to post in HTML, colors, send links, web
pages, poems, inspiration, e-cards, jokes, chat in our
chat room anytime! We are non-denominational, welcoming
all races, ages, religions and cultures. We know how tough
life is being sick, and we care. There is support for you
here anytime you need us. You are not alone." Yahoo!
group.
|
|
-
Butte County Lyme Disease Support Group. "This
site is created to assist those in Butte County CA who are
suffering from Lyme and other tick-borne diseases. It is
open to all who have been to our meetings, and those who
are too ill to attend. I hope you will find this site
useful and informative, and come back often." Yahoo!
group.
-
CFS-FM_INFO. "An announcement-only information
source for CFS/FM clinicians, researchers, support group &
advocacy leaders worldwide... CFS-FM_INFO’s goal is to
save busy physicians, researchers and support group &
advocacy leaders the time and effort involved in keeping
up-to-date by forwarding them only the most compelling
medical and research-related information about Chronic
Fatigue Syndrome, Fibromyalgia, Lyme Disease and other
related disorders, culled from the numerous CFS/CFIDS, FM
and Lyme Disease listgroups, websites and other online and
print sources. The member list is private (i.e., available
only to the listowner). Archives are available to members
only. As an announcement-only service, this list is meant
to supplement the many superb CFS/FM/Lyme lists in which
members may discuss issues & offer encouragement to one
another." Yahoo! group.
-
CFS / FM or Lyme Disease. "This group is to help
educate the public about Lyme disease and other tick borne
diseases, especially those diagnosed with Chronic Fatigue
Syndrome and Fibromyalgia. Lyme disease is now epidemic
throughout the world and is very difficult to diagnose and
treat due to the ignorance and politics of the medical
community and misinformation.
This group is meant to be a sympathetic and informative
group for those who want to learn about a very REAL
possibility. Lyme Disease is most often misdiagnosed as
CFS, FM, Alzeimers, Multiple Sclerosis, Lupus, etc. Lyme
is called "the new great imitator" for this reason. Please
see the Links and Files sections for more info."
Yahoo! group.
-
CFS-Mycoplasma · This list discusses treatments for
Mycoplasma,Chlamydia, Rickettsia and related infections.
"List focuses on Systemic Mycoplasma Infections as well as
Chlamydia, Lyme Disease, Rickettsia, Brucellosis,
Staphylococcus, Streptococcus and other related infections
in found in patients with Gulf War Illness, Chronic
Fatigue Syndrome, Myalgic Encephalomyelitis, Fibromyalgia,
Lyme Disease and autoimmune diseases. However, this is
primarily a mycoplasma list. Therefore, only posts that
include the word mycoplasma will be a approved for
posting. Members discuss treatments, medications, health,
symptoms and updated research. It is a support list, we
try to help patients with their treatments. We give
referrals to physicians by email requests and
laboratories' addresses are in the Database section. The
list is run and owned by the national nonprofit
organization the "MYCOPLASMA REGISTRY for Gulf War Illness
and Chronic Fatigue Syndrome." Political discussions are
allowed on our list, for patients and by patients, but may
not dominate the list. Our first goal is to help fellow
patients with their treatments. Not allowed are: Insults,
Profanity, Inappropriate and/or Hateful Language,
Off-Topics, Spamming, Advertising, Business Soliciting or
Marketing of Any Kind, or Exploitation. List owners:
Leslee and Sean Dudley. The "MYCOPLASMA REGISTRY'S On-Line
Registration Survey Form" can be found at: "American Gulf
War Veterans"
http://www.wandasimages.com/micop.htm The MYCOPLASMA
REGISTRY REPORTS, updated vital information and news are
distributed by our announcement only list." Yahoo!
group.
-
ChronicIllnessHouse. "Excellent patient
education material on Chronic Illnesses, Support,
Information on Hepatitis, Fibromyalgia, Chronic Fatigue
Syndrome ,CFS/FM, Lupus, Lyme, Multiple Sclerosis, Chronic
Pain and always adding other Illnesses. Always get
the advice of your M.D.!!..
I have 3 Chronic Illnesses, many like myself they are
Overlapping Diseases.
There's Some of the best Info on the Web that has
accumulated and is always being added to with new
posts..!,
You can get these posts Emailed to you in a daily digest
or individual or not at all just post and read online...
I hope to see you join Our online Family and we get to
help each other...Along with messages there a photo
section, Links, calendar, see what other Members are
online and Chats...
I also have many websites of my own and an Avatar Chat
Palace and would be glad to teach anyone about it ..and
the Chronic Illness House Main site
Calling All Angels to Guide us on Our Journey."
Yahoo! group.
-
Chronic Illness Housing Community. "A list group
for individuals hoping to envision and build a real-life
community for people with CFIDS (Chronic Fatigue Immune
Dysfunction Syndrome), MCS (Multiple Chemical
Sensitivities), FMS (Fibromyalgia Syndrome), GWS (Gulf War
Syndrome), chronic Lyme disease, and other illnesses.
Those with a serious interest in living in a healing
environment with others who are sick can join to talk
about possible locations, needs, practical concerns,
timelines, and building/rental issues. This community will
be queer-friendly and open and welcoming of all races and
ethnicities, etc., and will not tolerate bigotry of any
kind. It will also set up policies to make it a safe and
healing environment for the illness groups represented,
with set policies restricting use of chemicals and scents
that would harm those with chemical sensitivities.
Creative people -- artists, writers, visionaries -- are
encouraged to join." Yahoo! group.
-
EuroLyme. "Welcome/Velkommen/Willkommen/Bienvenue/Bienvenidos/Benvenuti
to EuroLyme the European site where patients and
professionals can find friendly support and reliable
information about Lyme and other Tick-borne Infections.
English is the primary language, but moderators already
support the languages illustrated above. We hope some day
to support all European languages so that YOUR questions
can be answered in your native tongue
Charity details
http://www.lymediseaseaction.org.uk/."
-
Finger Lakes Lyme Disease Support Group. "The
Finger Lakes Lyme Disease Support Group meets
approximately every month to provide support for Lyme
Disease patients and their families.
This mailing list will carry announcements of meetings as
well as provide a means for discussion among our members
between meetings.
For questions about the mailing list, please contact Joy
Veronneau, joy@lightlink.com.
For questions about the Finger Lakes Support Group, please
contact Marianne,
bigpapa@clarityconnect.com."
Yahoo! group.
-
FL-LymeDiseaseNetwork. "This site is for
Floridians interested in learning more about Lyme & Other
Tick-Borne Diseases. I AM RE-ACTIVATING THIS FORUM due to
the increase of infections of lyme disease here in
Florida. REGISTRATION REQUIRED. If you desire to receive
the Florida Lyme Disease Network E-newsletter, please
email me privately at
Loveyonlyme@aol.com. The Lyme Leading The Lyme."
Yahoo! group.
-
Flying With Fibro. "Many people that have
Fibromyalgia or related chronic illnesses are using the
Flylady system to complete housework and dejunk. This
system helps people with fibro, CFS, CFIDS, ME, myofacial
pain syndrome, lyme disease, etc to deal with all the
problems associated with this disease including brain fog,
fatigue, and muscle aches. Although the fly system works
for most people, fibromites & PWC may need extra support
as we attempt to manage our households. Issues of pacing,
home management with organization, and taking care of our
bodies will be discussed and supported. Sufferers and
their support network are all welcome. We have members
from several countries, cultures and religions - all are
welcome, so please consider this when posting.
Happy flying with fibro...." Yahoo! group.
-
Health-alternatives. "Want to add a list for
people who are interested in alternative health care for
people with Fibromyalgia, CFS, and Lyme etc. I hope people
can bring ideas, remedies, types of health care that has
help them cope with the struggles with these diseases. I
am interested in health spa type products that help ease
muscles, relieve tension, increase cellular immunity, and
are good for things helping pain. Also, aromotherapy is a
great, natural adjunct to health." Yahoo! group.
-
ImmunicsBuddies_Lyme. "Hi, I'm Frannie. We're
saving the world by teaching people that they can cure and
how to cure disease and have fun doing it.
People live because we and the people they love insist
that they do so. If people suffering with Lyme disease can
personally interact with others who are using immunics to
cure or control it, and coach one another, they will not
only become asymptomatic within a few months, but will
form a revolutionary cadre that will go on to eradicate
all diseases from humanity, because this is the natural
tendency of anyone who becomes able to cure or control any
disease.
If you have Lyme disease and wish to cure it, wish to
prevent it, wish to help a friend cure it, are already
doing so, or are an immunics master who has cured other
things and wish to help people who have Lyme disease, your
posts are welcome in this group!
Immunics was defined by Dr. Robert Casola as 'the
conscious, immediate, and intentional control of the
physiological and psychological aspects of your immune
system and the use of your control to do methodical
immunological actions that effect cure.'"
Yahoo! group.
-
Long Island Lyme Disease Association. "The Long
Island Lyme Disease Association is a support group for
people with Lyme and related tic born diseases.
Support group meetings are held on the third Monday of the
month at 7:30 PM in Nassau County, Long Island, New York.
This mailing list will keep you posted on any changes in
our meeting time or location as well as special events."
Yahoo! group.
-
LoveyOnLyme. "Discussion group for those who
suffer from Lyme Disease & Coinfections." Yahoo!
group.
-
Lymeaid · Lyme Aid - A support group for Lyme patients.
"Need a place to share your frustration and fears about
Lyme Disease? Need to feel a bit of encouragement or want
to inspire and uplift another sufferer? This is where you
are among others that understand your plight! Whether you
are confirmed Lyme or just suspect Lyme, you're welcome
here." Yahoo! group.
-
Lyme Aid. "Lyme Aid was founded in September
1998 to provide a way for Lyme Disease victims to come
together to share their knowledge of this disease and to
support one another. This list has become a wonderful
place to meet many different Lymies from all over the
world and share experiences of all different types
relating to Lyme disease. This is a very active list with
over 950 members and can average 50 messages a day. If you
want to discuss Lyme disease, please join us at Lyme Aid
today." Yahoo! group.
-
Lyme_Aid. "Information and support concerning
Lyme disease will be provided to the members of Lyme_Aid."
Yahoo! group.
-
Lyme and Related Disorders UK. "Purpose; to
bring together those with knowledge of, experience of, or
difficulties with Lyme and related disorders in order to
promote awareness of tick-borne infectious diseases, to
provide a forum to obtain help for sufferers or those who
suspect they may be infected, and to promote progress in
diagnosis, treatment and rehabilitation for those
affected.
We also aim to raise awareness of these issues among
health professionals, in particular GPs, Infectious
Diseases specialists, Paediatricians, Rheumatologists,
Neurologists, Public Health specialists and Occupational
Medicine specialists, amongst others, and to see public
funds made available for prevention and treatment of this
serious and very debilitating disease." Yahoo!
group.
-
Lyme-and-rife · Fighting Lyme Disease with Rife Machines.
"This group is about fighting Lyme Disease with rife
machines. Many people have received benefit from treating
their Lyme Disease with rife machines, as you can read on
the User Reports page. We also discuss other treatment
modalities which we have found to be more useful than
conventional (and even extended course) antibiotic
therapy. Our group is growing, with members representing
many medical disciplines including naturopathy,
homeopathy, Ph.d researchers, leading rife machine
researchers, and more. Please see our website,
Rife Machines and Lyme Disease, for more information.
A Lyme Disease / Rife Machine paperback book will be
published some time in late 2004, check back for details."
Yahoo! group.
-
Lyme-and-rife-sharing · Sister-Group to Lyme-and-rife.
"This group is an extension of the Lyme-and-rife group:
http://health.groups.yahoo.com/group/Lyme-and-rife/
This extension group was established to provide a separate
forum for people to discuss and arrange the sharing of
rife-like devices. Those who have a device they wish to
share, and those who are seeking a device to share, should
participate in this group. Regular discussion of rife-like
machines and other modalities should not be discussed
here. If you wish to discuss these other topics, please
visit:
http://health.groups.yahoo.com/group/Lyme-and-rife/."
Yahoo! group.
-
Lyme Aid Documents. "Lyme Aid Documents is a
compilation of information previously posted on Lyme Aid.
Because Lyme Aid generates a lot of personal dialogue,
Lyme Aid Documents was created so that there would be a
concise place where Lyme Aid members (and others!) could
go to search for information previously posted on Lyme
Aid." Yahoo! group.
-
Lyme Aid Off Topic. "This list is for members of
Lyme Aid (and others) to discuss anything not related to
Lyme disease. This is a great place for posting about
issues that concern us personally, that have nothing to do
with Lyme, including other diseases, humor and political
issues. This list is a great way for relationships formed
in Lyme Aid to continue to grow outside of the 'Lyme
Light'." Yahoo! group.
-
Lymebee. "Bee venom therapy for lyme group. BVT
is used for a variety of illnesses. Some people claim that
the honey bee has helped with their symptoms. This group
is to share personal experiences. Please consult with your
physician before any Bee venom therapy treatment."
Yahoo! group.
-
LymeData. "This is intended to be a group for
the posting of medical, scientific, legal, and legislative
data regarding Lyme Disease. It is not a support group nor
an activism group.
Membership is by application/invitation.
All members may post." Yahoo! group.
-
Lime Discussions.
Provided by the Canadian Lyme Disease Foundation.
-
Lyme Disease. "This is an open forum support
eGroup for persons affected by "Lyme Disease." This
support eGroup has been established for patients, family
members, medical professionals and rare disease
researchers interested in sharing information and/or
support for affected persons." Yahoo! group.
-
Lyme Disease and Me. "A great place for support
for those suffering from Lyme Disease or those who have
family or friends suffering. A FREE support group for
hugs, triumphs, trials and information."
-
Lyme Disease Camp. "This camp is designed to
help keep people informed about upcoming Lyme disease
retreat/camp weekend/weeks. And to give those interested
input in the decision-making process for upcoming
weekends/weeks." Yahoo! group.
-
Lyme DiseaseCo Infection Connection. "This group
is for anyone suffering from Lyme Disease and or it's
CO-infections to share stories, knowledge and lend support
when needed. Friends and family are welcome too."
Yahoo! group.
-
Lyme Disease Info. "Welcome to Lyme Info! This
email list has been created to supplement the website
http://www.LymeInfo.Net,
which has been serving the online Lyme disease community
since 1997. The moderators will provide periodic
announcements of the latest news coverage on Lyme disease,
including scientific items, upcoming events and important
action items, without the conversation found on email
support and discussion lists.
In addition to Lyme disease, messages will also include
information about other tick-borne illnesses.
Messages will be sent daily, mostly by group moderator
Rose. The number of emails to the list are generally
between 15-25 emails per week, depending on "traffic" in
the news.
We hope that you find this list informative."
-
Lyme-Disease-NJ. No description available.
Yahoo! group.
-
Lyme-disease · Progress of the disease and possible cures.
"Progress of the disease and posible cures." Yahoo!
group.
-
LymeDiseaseStories · True Stories about Lyme Disease.
"I am on a mission. I want to get as many true life
stories from people with Lyme disease, and publish the
stories in the book. Than we can give the profits to a
Lyme organization. Stories about related illnesses can
also be shared. This would be a great way to tell our
stories to the whole world, and to no longer be silent.
Please share with me your stories." Yahoo! group.
-
Lyme Family, lymefamily. "Friendly group,
sharing their fears, cheers, knowledge and questions about
Lyme Disease with each other. no flaming. We welcome
information from the Lyme community, but this is NOT the
place for controversy or attacking the politics of lyme.
Information on hearings, marches and letter writing
campaigns are usually provided as they are to all Lyme
groups, but that is the extent of it.
We have Lyme and are interested in our everyday experience
of living with lyme. We all support each other, living
with a disease that has radically changed our lives. many
of us are late diagnosed and disabled from the disease.
some are still working, some with children. either way, we
all need support. And more important we all need to laugh!
so happy news is encouraged." Yahoo! group.
-
Lyme-Healing. "Welcome! My name is Joseph, I
started this Group to help people with the Lyme condition.
Exploring new and old healing modalities that one can use
easily, safely and at a reasonable cost. The focus of this
Group is to explore alternative healing methods to support
your present healing and medical protocol. It is NOT
intended to be medical advice or replace your doctor or
your medicine that you are taking. You should always
consult with your doctor before making any changes in your
medication or adding to your medication or if you think
that you have been bitten by a tick.
The areas of discussion will focus on energy healing,
spirituality, gemstones and crystals, elixirs, products,
life style, diet and nutrition, meditation and prayer.
Your sharing and positive support will be of great help to
those in need.
I do energy healing work which has been very helpful in
this area, I am currently working with a healing and
balancing energy called The Life Force Matrix. If you
would like more information or are interested in learning
more about this type of healing please visit my site at
www.lifeforcematrix.com or email me at
lifeforce@bigplanet.com." Yahoo! group.
-
Lyme in autism. "discussion on our children are
testing positive for Lyme and mycoplasma who have autism
or add or seizures. Please join and contribute your
stories, and your healing messages to our families who are
suffering. Typically, the whole family is infected."
Yahoo! group.
-
Lyme_Info. "Information about Lyme disease will
be provided to the members of Lyme Info. Most information
will be provided by the members of this group." Yahoo!
group.
-
Lyme_Information. "Information about Lyme
disease will be provided to the members of
Lyme_Information by members and moderators."
Yahoo! group.
-
Lyme-information · Archive of TBD articles.
"Knowledge can help empower us to regain our health. The
objective for this list is to educate and support while
maintaining a clean archive of reports, journal entries
and documents of research relating to Lyme disease,
Erhlichiosis, Babesiosis and other tick-borne diseases. Be
sure to take a look at the "Links". Please share your
concerns, questions, laughs and inspirations with us.
Every few days I will go through the posts, delete the
personal posts and responses. Archiving only the posts
that are informational and making sure they have clear
subject titles will create an archive that is easy to
search and browse. Check out all the great information in
the archive! Welcome." Yahoo! group.
-
Lyme-mild hyperbaric. "This group is for those
interested in discussing the use of mild hyperbaric,
associated oxygen and heat therapies for those with lyme
disease.
There have been indicators and experiences that mild
hyperbaric may be able to help people in the recovery from
Lyme disease.
We will be discussing the protocols that people have used
and the results they have had as well as share the results
that people are having in the group that are using mild
hyperbaric.
The opinions and experiences of those sharing on this site
are not meant, nor to be construed as an endorsement or
suggestion that anyone engage in these therapies."
Yahoo! group.
-
Lyme-naturalhealthcare. "Welcome All... in this
group, we will be discussing and sharing natural health
care methods for helping us to recover from Lyme disease
and related disorders.
INCLUDING: Herbs, energetic methods, ozone, homeopathy,
oxygen, sanum remedies, neurotransmitter balancing,
parasympathetic recovery, detox, support, building
emotionally and physically, color, chi gong, meditation,
scenar, LED and laser, Heavy Metal protocols, ect...
There is also a prayer list for people desiring spiritual
support." Yahoo! group.
-
Lyme On A Dime. "A general support group for
Lyme patients. Facilitating the spread of Lyme information
through an email group." Yahoo! group.
-
LymeRICK.
"LymeRICK = Lyme borreliosis and Related Infections Center
of Knowledge.
This group WAS intended for SCIENTIFIC discussion about
tick borne infections, and the group WAS functioning very
well, until it became overflowed by many crosspostings
from other discussion groups. LymeRICK's aim was indeed to
collect knowledge about TBI, but it's tedious for a busy
person to have to handle and sort out the exact same
messages 4-5 times ! - and after the creation of the
International Lyme and Associated Diseases Society = ILADS
discussion group, and the majority of LymeRICK members,
including myself, joined ILADS, where the same scientific
issues were discussed, I no longer found need for the
LymeRICK discussion group and stopped enrolling new
members into it. My group had outlived itself and was
replaced by something better :)))
LymeRICK group files and links have, however, been kept
open for all and I have updated some of the material,
since much of what is presented here, could still be
useful. The material presented here may eventually be
duplicated / moved to another website." Yahoo!
group.
-
Lyme Resource Group (Marin County, CA). "The
Lyme Resource Group (Marin County, CA) is "dedicated to
actively pursuing traditional and complementary approaches
to overcoming Lyme disease and all of its associated
anomalies through research, sharing information and
documenting results." Meetings are held the second
Thursday of the month, venue varies and is posted via
email. This forum provides a source for members to post
information on upcoming events, initiate carpools, and
post files or articles shared in meetings." Yahoo!
group.
-
Lyme-Rife · Lyme-Rife Discussion. "Discussion
Group for people treating Lyme disease with Rife/type
frequency machines." Yahoo! group.
-
Lymestrategies. "Lyme Strategies is a site
dedicated to the ongoing research of practical approaches
to Lyme infection. It is based primarily upon the the
approach described at the Lyme Photos website:
http://www.lymephotos.com/index.shtml.
Though the main thrust of the site is to forward research
on this approach, other adjunct approaches and strategies
are also examined as regards nutritional, nutraceutical,
bio-electric, herbal, holistic, etc.." Yahoo! group.
-
Lymestudents · Students with Lyme. "This is a
group for students, especially college students (undergrad
and graduate) who have Lyme disease or other chronic
illnesses. I want this to be a support forum for the
unique issues associated with trying to battle a chronic
disease while moving forward with your life. This should
be a positive place for helpful suggestions and together,
maybe we can give each other a little more hope."
Yahoo! group.
-
LymeTeens. "LymeTeens is a members-only group
for adolescents with Lyme disease. Here you can discuss
your problems, fears, and successes with your peers. This
group is administrated by the Lyme Disease Association of
Southeastern Pennsylvania, Inc., which is dedicated to
helping our friends in the Lyme community throughout the
U.S. LymeTeens has professional health care professionals
as advisors who may comment from time to time."
Yahoo! group.
-
Lyme Tampa Bay Support Group. "Meet others to
discuss treatments, options, and support for this growing
Lyme problem in Florida. Open to all patients, family,
caregivers." Yahoo! group.
-
Lyme Warriors. "This is a list for young people
suffering from Lyme disease. Anyone who wants to
communicate about the concerns involved with this disease,
and it's specific effects on young people, are invited to
join Lyme Warriors." Yahoo! group.
-
Medconsumerinfo. "Medconsumer.info is your
starting point for searching the Web for medical
information. This forum exists for you to discuss, ask
questions, and answer questions about any aspect of
health, healthcare industry, and any aspect of being a
patient. Please take whatever advice you receive through
this forum to your doctor before changing or initiating
any medically-related behavior." Yahoo! group.
-
ME-CFS-FMS_infections · ME CFS FMS and hidden zoonotic
infection. "The purpose of this group is to
highlight the need for patients with ME/CFS/FMS to make
sure they are adequately tested for hidden zoonotic
infection in particular Borreliosis/Lyme Disease. Many
people previously diagnosed with ME/CFS/FMS are finding
out that they do in fact have hidden infections which is
what may be either causing their illness or keeping them
ill. The problem is that it can be very difficult to find
a Doctor who will order accurate tests or be able to
interpret the results and order effective treatment. We
can't promise all the answers here, but may be able to
point you in the right direction by sharing our
experiences and providing links and files with the
information you need to make an informed decision. I am
not an expert and do not have all the answers, but I am
keen to highlight this issue. Lack of testing and
identification of hidden infection has affected the health
of myself and my family for many years. We hope that we
are now on the road to recovery and would like to see
others helped in the same way. Victoria." Yahoo!
group.
-
MycoplasmaRegistry · GWS, CFS, FM, LD & Autoimmune
Diseases. "For GWS,CFS,FM,LD,autoimmune
diseases. FREE Brochure: "How to Get an Accurate
Polymerase Chain Reaction(PRC) Blood Test for Mycoplasmal
and Other Infections with a List of International
Laboratories"© by Sean and Leslee Dudley is emailed to new
subscribers. Its updated with current information and the
new version is posted to this list each month.
This is an announcement list for the distribution of
MYCOPLASMA REGISTRY REPORTS and updated medical
information and news for people interested in diseases
that have Systemic Mycoplasmal Infections (ICD-10-CM code:
Mycoplasma A49.3) as the cause or cofactor in: Gulf War
Syndrome, Chronic Fatigue Syndrome/Myalgic
Encephalomyelitis, Fibromyalgia, Lyme Disease, Rheumatoid
Arthritis, Systemic Lupus Erythematosus, Scleroderma,
Sjögren's Syndrome, Amyotrophic Lateral Sclerosis,
Multiple Sclerosis, Asthma, Respiratory Distress Syndrome,
Pneumonia, Bronchitis, Inflammatory Bowel Disease,
Sarcoidosis, Wegener's Granulomatosis, Histiocytic
Necrotizing Lymphadenities "Kikuchi's Disease", Leukemia,
Alzheimer's Disease, Autism, Infertility, Stevens-Johnson
Syndrome, Acquired Immune Deficiency Syndrome."
Yahoo! group.
-
Parents of Lyme Kids (PoLK). "Children with Lyme
disease, and their parents, face unique challenges and
situations. Parents of Lyme Kids allows a place for
parents to come together and discuss these challenges and
situations, to find support among others and to seek
advice from those who 'have been there'." Yahoo!
group.
-
Puget Sound Lyme. "We are a private discussion
group for Lyme Disease and Tickborne Illness for the Puget
Sound Area in the State of Washington.
We also have a State of Washington Discussion Group and
Web Page
Online Support:
WA-Lyme@yahoogroups.com
Web Page:
http://groups.yahoo.com/group/WA-Lyme
List owner: WA-Lyme-owner@yahoogroups.com."
Yahoo! group.
-
Rhode Island Lyme Disease Victims. "A support
group message board for Rhode Island victims of Lyme
disease. A place to ask questions and contact othe local
victims to get together for rides to the doctor. Also a
home page for the Warwick Support Group to post meeting
times and information." Yahoo! group.
-
Rife_Uncensored · Secrets of Rife Therapy and others.
"Rife therapy, Hulda zappers, Beck blood electrification,
Magnetic Pulsers, etc. Read all the miraculous success
stories for treating cancer, depression, CFS Chronic
Fatigue Syndrome, Herpes, AIDS, HIV, Lyme, and parasites
that have been posted in other lists by the people that
actually did them, and now re-posted here where they
cannot be censored by special interests. All info is
excerpted from other people's posts in other lists, so
this will be a read-only list." Yahoo! group.
-
Robynn's Lyme List. "I provide current and/or
relevant Lyme disease information almost every day to the
members of Robynn's Lyme List. (The season will dictate
how much information is being published.) Currently I have
over 1400 members including many doctors and support group
leaders from around the world as well as state and
national legislative members from the U.S. This list is
great for people who do not have a lot of time, yet still
desire to stay on top of the latest Lyme disease
information. Most of my members find this information
invaluable, yet never overwhelming.
This list was originally started by private email in
1997." Yahoo! group.
-
Santa Cruz Lyme Disease Support Group. "There is
Lyme disease throughout Santa Cruz County. This group is
for friends and family of those affected, as well as for
the general public, as a resource to learn about Lyme and
other tick-borne diseases in California, such as
Babesiosis, Ehrlichiosis & Bartonella, all of which are in
Santa Cruz County. We have a monthly meeting in person at
the Aptos Library as well as two online meetings monthly,
those being one political for those interested in Lyme
activism and one as a support group for the newly
diagnosed and those with chronic Lyme issues. Ehrlichiosis
has been documented at 13.3% in ticks within MUNICIPAL
LIMITS of SC. California Babesiosis is WA1 and will tend
to test negative on the standard Babesia (Microti) test.
Bartonella is an old infectious disease with a newly
recognized vector- the tick. A few of these diseases may
be transmitted in one tick bite and there may be no rash
of any kind. Many tick bites go un-noticed. People can
test negative for Lyme but still have it and even be
negative on spinals. Any questions feel free to email
Sarah Weiss at
CaliforniaLyme@cs.com or see our web page at
http://www.angelfire.com/punk/lymedisease. You
are not alone if you have Lyme in Santa CRuz- welcome to
our group." Yahoo! group.
-
Singles with Lyme. "Singles with Lyme is a group
for single people who have Lyme disease to gather and
interact. The issues people with Lyme disease face,
especially when dealing with relationships, can be unique.
This group intends to be a place where people can discuss
these unique challenges." Yahoo! group.
-
Sonoma County Lyme Support. "Welcome to Sonoma
County Lyme Support!
This forum is for those in Sonoma County, CA who are
dealing with tick borne illnesses, including Lyme, Babesia,
Ehrlichia, and Bartonella. This is a place to share
resources, experience, and support. If you are just
considering a Lyme diagnosis as a possibility, please
contact Sonoma County Lyme Support at
lymeinfo@sonic.net,
and we will be happy to help you with referrals.
We are a private discussion group. Please don’t be
offended if we ask some questions before we add you to the
list. We pre-screen all new members to assure privacy, as
we strive to be a SAFE place to discuss personal
information.
Be sure to check out the links (open to the public) and
the files for LOTS of information." Yahoo! group.
-
Texas Lyme Support Group. "Advice and support
for patients with Lyme Disease in Texas." Yahoo!
group.
-
Upstate New York Lymies. "This group is for all
people with Lyme Disease who are located in upstate New
York." Yahoo! group.
-
Vermont Lyme Information Resource. "Support for
people in Vermont and adjacent areas who have Lyme and
other tick-borne diseases. A friendly place to get to know
one another and share our experiences and information.
Though a small group, we are very active! To provide
privacy for our participants, we require approval of new
members, but we are open to all. No commercial messages.
Sponsored by Vermont Lyme Information Resource, which
provides information about tick-borne diseases to both the
lay public and the medical community in Vermont."
Yahoo! group.
-
Voices Of Lyme. "Voices Of Lyme will evolve as
members join and we as a group decide how best to use this
list." Yahoo! group.
-
Washington State Lyme Disease. "We are a private
discussion group for those who have Lyme Disease or other
Tickborne Disease(s), commonly referred to as Lyme Disease
Co-Infections." Yahoo! group.
|