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Graphic representing online discussion of heart disease.
Heart Disease Discussions

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Also see Heart Disease

Online Discussions Dealing With Heart Disease

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

  • 1heartbeat · 1 Heart Beat.  "1 Heart Beat is intended as a support group for people who have had a heart attack, heart disease or care for/about someone with heart disease or are otherwise interested in living with or preventing heart disease.

    Technical discussions are encouraged, I have keep this list an open forum where it is realized that heart disease support includes emotional support and general friendliness.

    I have intended for "1 Heart Beat" to be a friendly place, please try not to be insulting to others in their opinions or idea's. I reserve the right to ban anyone from the list who can't or will not be friendly and goes beyond a good discussion (no personal insults).

    Any advice given by list members must be taken with a grain of salt. Check with your medical provider before changing any part of your lifestyle. This is an open forum, those posting messages are probably not medical experts, but just plain people like the rest of us. What works for them may not be right for you."  Yahoo! group. 
  • Alternative_Medicine_Forum.  "ALTERNATIVE MEDICINE, Vitamins, Nutrition, And Health: For all who want the best ways for optimal health or healing, and who need an alternative to conventional or allopathic medicine.

    Geared to health treatments or nutritional therapy modes, using alternative medicine, especially to heal or cure with nutrition, such as vitamins, minerals, amino acids, herbs, oils (fats / fatty acids), enzymes, foods, diet, juicing, and other natural healing remedies.

    So whether you are curing with vitamin supplements, herbal medicine, Traditional Chinese Medicine, acupuncture, or some other natural medicine for health, come and learn, or share what you know with us.

    We are not Doctors, although the points under discussion are usually from the fields of natural medicine, orthomolecular medicine, holistic medicine, Naturopathy, alternative medicine or even complementary medicine.

    Our members discuss ways to deal with cancer, stroke, AIDS, HIV, fibromyalgia, Chronic Fatigue Syndrome, arthritis, heart, liver, kidney, or thyroid disease, osteoporosis, immune system problems, Irritable Bowel Syndrome, Ulcerative Colitis, hypertension, cholesterol, Crohns, diabetes, depression, mental illness, candida, Leaky Gut Syndrome, and many others.

    Although we cannot say we have any specific cure for any specific disease, we do believe any illness is curable. So, if you want alternative medicine, naturopathy, holistic medicine, complimentary medicine, orthomolecular, as natural healing methods. Come and trade health information and support in a non commercial setting of mutual respect and caring.

    'Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world.' - Linus Pauling." Yahoo! group. 
  • BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group. 
  • Cardiac Rehab.  "This list is intended for those who work in the profession of Cardiovascular Rehabilitation. It is setup for the discussion of current issues and trends in Cardiac Rehab as well as the sharing of information concerning current news and developments in the treatment of heart disease."  Yahoo! group. 
  • Dilated Cardiomyopathy UK.  "My name is Martyn Painter, (that’s a picture of me) I am 35 and I have Dilated Cardiomyopathy, which is a disease of heart that leads to Congestive Cardiac Failure (Heart Failure). It was diagnosed during April 2002 after I went to Casualty because I was feeling so unwell and was getting no help from my G.P. I am being seen by my G.P., local Cardiac Specialist and the Transplant team at Harefield Hospital (I am not currently on the transplant list). I go up to Middlesex every six months to be access for the list, so far my medication is keeping my heart stable, a full list of all the medication I take is below. I have taken medical retirement from my job with Barclays bank.
    I have noticed that most of the groups on Yahoo are US based and the medications and treatments are very different. I wanted to set up this group so UK based people could talk and support each other. While this is true I would welcome any members from the around the world to share and discuss and problems or issues.
    This site is not just for people with DCM but also for careers, family and friends, I really want to make it relaxed and fun, please discuss anything related to heart disease and how it effects your life.
    This group has been going for over two years and I would like to thank all members past and present for their posts, it has been a great experience for me and I hope for others."  Yahoo! group.
  • FlaxSeedOil · To study and discuss the health benefits of flax seed oil. This email is moderated by Cliff Beckwith.  "To study and discuss the health benefits of flax seed oil. This email is moderated by Cliff Beckwith who is a Prostate Cancer survivor thanks to taking flax seed oil for the last 8 1/2 years. Join in and learn all the benefits including reversing heart disease, immune disorders, cancer and many more. You can reach Cliff at spinner@usit.net or Dr. Basile at JABTennKJV@aol.com or Rev221819@aol.com ."  Yahoo! group. 
  • Healthy-Recipe.  "Eat great comforting delicious foods that are also healthy.

    Though better food choices, Fight heart disease, diabetes, high cholesterol, high blood pressure, low blood sugar, pain, fibromyalgia, infections, osteoporosis, depression, fungal infections, arthritis pain and stiffness, obesity and other illnesses and malaise, without sacrificing foods that are enjoyable and tasty." Yahoo! group.  
  • Heart Disease - Surgery? CABG? PTCA? What?? HELP!!.  "Heart Disease Support Group. Doctors, nurses, former patients and current patients with heart diseases are invited and encouraged to join this group to share expertise, experience, and knowledge regarding heart disease and their treatments."  Yahoo! group.  
  • Heart Failure Survivors and Support.  "ou are an important part of Heart Failure and Heart Disease's C ardiomyopathy Support Group, Whether you have heart problems or are looking to prevent them, it's a good idea to learn as much information as you can. If you or someone you love has been diagnosed with heart failure, it can be frightening. This is a serious condition that has no cure, but you can live a full and enjoyable life with the right treatment and active attention to your lifestyle. Here we will discuss life style, excerise, nutrition and give one another needed support."  Yahoo! group.  
  • LindaGoesLowCarb · Diabetes, obesity, help without meds.  "Diabetic? Overweight? Hate taking medication? You've come to the right place for help. More and more enlightened folks are recognizing that long-term, permanent weight control and good health are tied to CARBOHYDRATE intake, NOT fat, not calories, not diet pills, etc. Diabetes is epidemic, and doctors are pushing meds on us with no regard for consequences. I'm a Type II diabetic, and have a message of hope for all. Americans love carbohydrates! Potatoes, pasta, bread – all high carb foods! When high carb foods enter your body, they are quickly broken down into glucose (sugar), which raises your blood sugar levels, causing insulin (the fat-storing hormone!) production. We discuss how to minimize this process. We will also cover many natural nutrients and Ayurvedic remedies which rebuild, restore, and rejuvenate, our bodies! This forum is NOT limited to weight loss, but includes dealing with diabetes, heart disease, etc. I am committed to natural healing methods. Please join us!" Yahoo! group.
  • Lower-sodium · Recipes and tips for lowering dietary sodium (salt) intake.  "Most people's diets contain far more sodium than they need. People with conditions such as high blood pressure, congestive heart failure, kidney disease, or edema or fluid retention may especially benefit from sodium restriction.

    However, it can be very hard to restrict sodium. Lower sodium isn't "in," and most prepared foods contain large amounts of sodium. This list is to provide both lower sodium recipes as well as tips, hints, and sources for finding lower sodium prepared foods.

    This list is for all levels of sodium restriction, from those just desiring to moderate their sodium intake, to those who must practice strict sodium restriction."  Yahoo! group. 
  • Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group. 
  • RawFoodArticlesArchive · Raw Food Articles Archive.  "The Raw Food Articles Archive is a regularly updated archive of articles from the mainstream media about raw foods. The most ancient way of eating is the wave of the future. This group can serve to document the explosion of raw foods into mainstream media. Do you know of a raw foods article that appeared in a mainstream magazine or newspaper, but hasn't yet been posted here? Please send the article or a link to it so I can make it available to group members."  Yahoo! group. 
  • Raw Foods for Health and Happiness.  "Stop cooking your foods! Increasing the RAW FOOD in your diet can greatly improve your health! Food ENZYMES are important to your health. Let's share info, tips, sources, url's, recipes and personal experiences with eating more RAW FOOD.

    This group is here to support people wanting to learn how to eat a Healthy Raw Food Diet. Just because something is raw doesn't necessarily mean it is the best thing for us. This group supports a Vegan Raw Food Diet. Please don't come here trying to promote other diets.

    This is a friendly group of people. We welcome debate, but do it without name calling and anger in the posts. Negative posts and posters will be banned.

    You are also welcome to share your experiences with NATURAL HYGIENE. Animals in the wild live according to their instinct and the laws of nature. They live their lives without getting cancer, heart disease, stroke and the other diseases of so-called "civilization." No animal in the wild takes supplements. They just eat the foods they are biologically adapted to.

    Natural Hygiene is a study of nature and of health. So come and share your experiences of nature in action. We can also discuss the writings of authors in the raw food movement including Dr. Herbert Shelton, Dr. Douglas Graham, David Wolfe, Dr. Gabriel Cousens and so on."  Yahoo! group.
  • Stopped_Our_Statins · Stopped Our Statins.  "Membership is Restricted to protect members' privacy & guard against spam; requires owner's approval. Management will NOT tolerate any abuses of this group.

    Stopped Our Statins is for those experiencing AE's (adverse effects) to statins: Advicor(Niacin Extended-Release & Lovastatin), NEW ~ Caduet (Lipitor & Norvasc), Crestor(Rosuvastatin),Lipitor(Atorvastatin),Lescol(Fluvastatin), Mevacor(Lovastatin), Pravachol(Pravastatin), Zocor(Simvastatin),Vytorin(Ezetimibe-Simvastatin) & Baycol(Cerivastatin). Baycol, causing over 100 deaths & 11,000 cases of severe side effects, was removed from the market 8/01.

    While taking a statin, did you experience:
    * Shoulder/neck or muscle pain?
    * Difficulty turning over in bed?
    * Difficulty walking (heavy legs)?
    * Frequent fatigue for no apparent reason?

    Did your doctor ever tell you:
    * To take CoQ10 when taking statins?
    * All the possible side effects that might far outweigh any benefit?
    * Statins can make you exercise intolerant?

    When you complained of muscle pain: Did your CK/CPK test come back NORMAL? AND your doctor said statins are NOT your problem; must be arthritis? Old age?

    "Some" serious statin complications:
    * Rhabdomyolysis: Disintegration of muscles, severe cases can lead to kidney failure & death.
    * Elevated Creatine Phosphokinase [CPK]: Enzyme released due to damage of the muscles of the heart, body & brain
    * Memory Loss, often mistaken for Alzheimer's
    * TGA (transient global amnesia)
    * Parkinson's type symptoms
    * Cancer
    * Heart Palpitations & Arrhythmias
    * Migraines
    * Digestive Disorders

    This website is not a substitute for quality medical advice. Always consult your doctor for proper treatment. "Print articles" may be useful when discussing treatment with your doctor.

    IMPORTANT Links:
    NEW - Online SES Survey (UCSD Statin Effects Study)
    http://www.statineffects.com/

    Report statin adverse effects to FDA's MedWatch
    http://www.fda.gov/medwatch/

    Dr Graveline's Forum
    http://www.spacedoc.net/board/.
  • SVTSupport · Arrhythmia's/SVT.  "Welcome to Arrhythmia's/SVT. SVT stands for supra ventricular tachycardia, which is a disease where your heart starts to pound extremely fast and hard for no apparent reason. This is a support group for people with all types of arrhythmia's. Come talk with us about medications, treatment options, recovery, whatever you like."  Yahoo! group. 

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