Graphic link to the home page of  Medconsumer.info http://www.medcomsumer.com

 
Home
About
Advertising
Contact
Disclaimer
FAQ
Feedback
Forum
Govt. Agencies
Healthcare Products
Legal
Link to
Medconsumer.info
Other Resources
Press Releases Received
Privacy
Request a Link
Search Medconsumer
Suggest a Link
 
 
 

 

 

Crohn's Disease

Request or suggest a link. 

Also see Colitis and Inflammatory Bowel Syndrome.

Articles

Books

Clinical Trials

Encyclopedic Information

Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

  • A Crohn's Diet Discussion.  "This club is about diet and how it affects Crohn's Disease/UC. Specifically, the Specific Carbohydrate Diet as defined by Elaine Gottschall in the book, Breaking the Vicious Cycle.  Yahoo! group.
  • Amazon Lifeline.  "Amazon Lifeline is a support and social group for lesbian, bisexual and transgendered women who are living with chronic illness or disability. The group provides a safe, accepting and supportive friendship circle--a source of encouragement, connection, laughter, information, and companionship.

    What kind of chronic illnesses and disabilities are welcome in this group? All kinds. For example: Sleep apnea, rheumatoid arthritis, psychiatric illnesses, physical disabilities, Parkinson’s disease, osteoporosis, OA, MS, migraines, Lyme disease, lupus, IBS, IBD, hypo/hyperthyroidism, hypertension, hepatitis, gout, fibromyalgia, epilepsy, diabetes, depression, deafness, cystic fibrosis, Crohn’s disease, colitis, chronic pain, chronic fatigue syndrome, cancer, blindness, bipolar disorder, autoimmune disorders, asthma, arthritis, allergies, and AIDS-HIV..."  Yahoo! group.
  • BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group.
  • Caring4KidsWithIBD.  "This is a general support list for parents of children with Colitis, Crohn's Disease and IBD. Anyone is welcome to join. Hopefully we can share information, offer ideas and find support."  Yahoo! group.
  • CasiClubhouse · Casi's Clubhouse Autism Support Group.  "Casi's Clubhouse is a support group, discussing ANYTHING related to vaccine injury. Topics include autism, ADD/ADHD, RETTS Syndrome, Lupus, Crohn's Disease, MS, Alzheimer's, OCD, Arthritis, Diabetes, ALS, IBS, Bi-Polar, Lyme Disease, Parkinson's, Fibromyalgia, Chronic Fatigue Syndrome, Thyroiditis, SIDS, SBS and many, many more! The clubhouse was started in loving memory of Casi Renee Oakes (June 3, 1995 - June 13, 1999). The messages posted on the clubhouse are not affiliated with any organization and the information obtained, is not considered to be medical or legal advice. Please learn from our mistake and "Educate BEFORE You Vaccinate!" YOUR CHILDREN...YOUR CHOICE...YOUR RIGHTS... For more education and support, please visit www.CasiQuest.org, www.AutismAutoimmunityProject.org, and/or www.VacInfo.org.  Yahoo! group. 
  • Cdsicrohnssupportclub.  "Welcome. This club is for Crohn's disease patients and their family and friends. It is a great place for support, friendship and information from other Crohnies. Please join us, you will make many new friends here."  Yahoo! group.
  • Colitis-crohns.  "Ulcerative Colitis (UC)/Colitus, Crohn's disease (CD) , Irritable Bowel Syndrome (IBS), Infalmmatory Bowel Disease (IBD) -support e-mail group/community We are people sharing information on Curing IBD and IBS This List is NON-COMMERCIAL, we are not selling cures, supplements or books. We are only sharing information. Subjets: - Diet for IBD, Specific Carbohydrate Diet (SCD). - Blood Type Diet (ER4YT) - Paleo diet (cave man diet) - Book "Breaking the Vicious Cycle", by Elaine Gottschall. - parasites - bowel cleanse - liver and gallbladder gallstones cleanse - dental cleanup - Cleansing bowel, kidney cleanse(kidney stones), Liver and Gallbladder cleanse,massage, Herbal formulas, Parasite killing herbs, enema, Toxins, Dental cleanse (amalgam, nickel, root fillings, cavitations, bacteria), Diet (Blood Type Diet, Max B. Gerson diet, ...),Water, Supplements ( Flaxseed oil Colloidal minerals, Calcium, Magnesium, Vitamin D, Vitamin E, Selenium Coenzyme Q10 Colloidal minerals chelation therapy Vitamins Enzymes seaweed kelp kombu shiitake miso), Foods to avoid ( cholesterol, sugar aspartame meat and saturated fats, eggs,... )."  
  • Colitiscrohns · IBD - IBS - Colitis - Crohns - Colitus.  "Ulcerative Colitis (UC)/Colitus, Crohn's disease (CD) , Irritable Bowel Syndrome (IBS), Inflammatory Bowel Disease (IBD) -support e-mail group/community We are people sharing information on Curing IBD and IBS This List is NON-COMMERCIAL, we are not selling cures, supplements or books. We are only sharing information. Subjects: - Diet for IBD, Specific Carbohydrate Diet (SCD). - Blood Type Diet (ER4YT) - Paleo diet (cave man diet) - Book "Breaking the Vicious Cycle", by Elaine Gottschall. - parasites - bowel cleanse - liver and gallbladder gallstones cleanse - dental cleanup - Cleansing bowel, kidney cleanse (kidney stones), Liver and Gallbladder cleanse, massage, Herbal formulas, Parasite killing herbs, enema, Toxins, Dental cleanse (amalgam, nickel, root fillings, cavitations, bacteria), Diet (Blood Type Diet, Max B. Gerson diet, ...),Water, Supplements ( Flaxseed oil Colloidal minerals, Calcium, Magnesium, Vitamin D, Vitamin E, Selenium Coenzyme Q10 Colloidal minerals chelation therapy Vitamins Enzymes seaweed kelp kombu shiitake miso), Foods to avoid ( cholesterol, sugar aspartame meat and saturated fats, eggs,... ).  Yahoo! group.
  • Crohn's Group.  "This list is to provide a forum for victims of Crohn's Disease (and related illnesses) to discuss their illness, advances in treatments and medications, news about the search for a cure, and general discussions on coping with the illness. Crohn's patients, as well as family members and friends of Crohn's patients are welcome to join in the discussions."Yahoo! group.       
  • Crohns_crossing_for_christians · Crohn's Crossing for Christians.  "Welcome to Crohn's Crossing for Christians. This group is designed for Christians fighting Crohn's disease either in their own life or in the life of a loved one. Come share with fellow believers in Christ the burden of the cross that those of us touched by Crohn's disease bear. We'll talk with you, laugh with you, cry with you, and pray with you."
  • Crohns_group · Crohn's Disease.  "This group is for crohn's disease victims, or friends or family of someone with the disease.  To chat hang out, ask advice, compare experiences, questions, concerns, or anything you feel like sharing."   
  • Crohnsdiseaseandweightloss · Crohn's Disease And Weight Loss - A Place To Deal With Weight Loss Due To Crohn's.  "Hello! My name is Nora. I am 18 years old and a person with Crohn's Disease. Lately I have been looking for a club that I could go to over here in Yahoo that was about people who were loosing weight due to Crohn's Disease and I could not find one. People with Crohn's Disease tend to loose a lot of weight so I thought this would be a good club for those who need support through it. I am also the founder of the Crohn's Disease Awareness Club over here in Yahoo! so if you want feel free to check it out. Thanks for stopping by."  Yahoo! group.
  • Crohns-friends.  "This is a list for people with Crohn's Disease, IBD, Colitis. Anyone is welcome to join. I started this list because of the wide volume of traffic on my website that wished contact with other people. I hope it is as successful as the web page has been.
    Enjoy share your thoughts, ideas, problems, questions. This group produces a lot of emails for a less chatty group consider joining Crohns-updates a second group I have created."  Yahoo! group.
  • Crohns_n_colitis.  "This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be able to provide you with information about the diseases, and be of any help to those of you who suffer from these terrible afflictions." 
  • Crohn's Updates.  "This group is designed to be less "chatty" than Crohns-Friends. So if you like to chat please join both groups or the other. This will be for updates and things we learn about Crohn's Disease."  Yahoo! group.
  • CrohnsWellness · A list for people with Crohn's Disease.  "Mutual support for people with Crohn's disease.

    This list is for people who suffer from Crohn's Disease and their friends and family. Please introduce yourself to the group. Tell us your name, where you live, and how long you've had Crohn's."  Yahoo! group.
  • Crohn's Zone.  "Crohn's Zone is a support and information network for people with Crohn's disease, ulcerative colitis or any other form of inflammatory bowel disease.

    We share information, personal advice and support with those living with IBD. We all suffer from IBD, so the forum is open to discussions about topics you would otherwise feel embarrassed about approaching. Whether you're newly diagnosed or have had IBD for years, you will be welcomed here by our friendly and helpful members.  UK IBD community.  "  Yahoo! group. 
  • Chronic Boutique.  " The Chronic Boutique (Chronic Pain Boutique) is a caring welcoming group open to anyone with chronic pain and are taking all pain medications including narcotic pain medications such as : Oxycontin, OxyFast ect.. used to treat conditions listed but not limited to: Chronic intractable abdominal pain, Irritable bowl syndrome, Crohn's disease, Colitis/ulcerative colitis, Cancer, Chronic Fatigue Syndrome, Reflex Sympathetic Dystrophy, Fibromyalgia, Back/disc problems/T's & L's, Arthritis and Lupus and. If you or someone you know suffers with chronic pain please join this forum. No commercial posts of any kind are allowed. Chronic Boutique is a Moderated group and is open to the public."  Yahoo! group.
  • Enduring Crohn's.  "A group for people with Crohn's Disease or any of the other Inflammatory Bowel Diseases (IBDs). Other IBDs include Ulcerative Colitis and Irritable Bowel Syndrome. We also encourage you to join if you have a loved one or friend who has an Inflammatory Bowel Disease. It would be a great way to gain a better understanding of what it is like for them to live with their illness."  Yahoo! group.  
  • GutitOut · Gut It Out.  "A group for young teens and adults (12 - 25 years old) struggling with Crohn's Disease, Ulcerative Colitis, and IBD. Support 24/7, lots of ideas on coping with these vicious diseases, the latest on cures/drugs and mainly a place where you can connect with others your age and finally have people understand what a pain it is to live with this."
  • HelpforDejana · Help for Dejana.  "As nothing can stop the sand in the hour glass to go to the bottom half of it, so my sickness nothing, except the surgery, can stop from winning over me. My name is Dejana Lekic. My normal life was interrupted in the very beginning, 16 years ago, when I got a severe form of Crohn's disease, inflammation of intestines with cause unknown. Since then, some would say by the struck of faith, because my sickness was not understood and severity of it was underestimated I had to undergo surgeries 20 times. Each surgery had to remove a little bit of the intestines and now I have just 50 centimetres of small intestines. Everything else, small intestines, large intestines, gallbladder. had to be removed. That is how I became the only patient of this kind in Yugoslavia."  
  • Jewish-IBD.  "This group is designed specifically for Jewish people with Inflammatory Bowel Diseases, namely, Crohn's Disease and Ulcerative Colitis.  Yahoo! group.
  • Ibdcanada · IBD-Canada.  "This group is for those affected by IBD- Ulcerative Colitis and Crohn's Disease. Use this group as: a means to support, news, tips and advice for all things IBD."  Yahoo! group.    
  • Ibd-news · IBD News.  "A filter of any and all news related to Inflammatory Bowel Disease (i.e. Crohn's and Ulcerative Colitis). Keep up-to-date with the latest developments in research and therapy."  Yahoo! group.    
  • IBD_Spirituality · IBD Wellness and Spirituality.  "Crohn's is the best thing that has ever happened to me.

    For people interested in exploring and discussing the impact that the Mind, Body, Spirit Connection has in the health of Crohn's and Colitis. To share ideas, ask questions, receive advice and share your experiences. I have Crohn's disease and am in consistent remission based on things I have learned about my bowel and spirituality. This has proven to be the single greatest factor in my healing. I have much to learn, and I know you can teach me."
  • Immune_System_Health.  "This group will discuss these and other health concerns related to immune system function, offering support, encouragement and practical advice for those looking to improve the health of their immune system to address either a specific health concern or to simply improve overall health and resistance to disease.

    The group also exists as a forum to discuss the clinically proven health benefits of Immunocal™, and the strategy of boosting intracellular glutathione levels in order to strengthen the entire immune system. Immunocal™ has been clinically proven (see PDR, see Medline) to replenish the glutathione (GSH) levels present in all cells and allows for the body's full immune response. By optimizing and sustaining glutathione (GSH) levels in the cells, Immunocal™ also works to combat the damaging effects of free-radicals, helps to detoxify the body, and enhances the efficacy of external antioxidants with NO known side-effects.

    Group members may post questions or comments related to the immune system and associated health conditions, as well as questions and/or comments regarding Immunocal."  Yahoo! group.
  • Immune-trigger · Immune System & Autism, Allergies, Arthritis, Autoimmune, Cancer, Candida, Chronic Fatigue, Fibromyalgia, Herpes, OCD and more.  "Your greatest defense against illness and disease is to promote a strong and healthy immune system. Health conditions related to immune system dysfunction include Allergies, Arthritis, Asthma, Autism, Autoimmune Disease, Cancer, Candida, Chronic Fatigue Syndrome, Colds, Crohn's Disease, Epstein-Barr Virus, Fibromyalgia, Heart Disease, Hepatitis C, Herpes, HIV/AIDS, Infection, Influenza, Insulin-Dependent Diabetes, Irritable Bowel Syndrome, Lupus, Multiple Sclerosis, Obsessive Compulsive Disorder, Otitis Media, Rheumatism, Sinusitis, Tourette's Syndrome, and more.

    This group will discuss these and other health concerns related to immune system function, offering support, encouragement and practical advice for those looking to improve the health of their immune system to address either a specific health concern or to simply improve overall health and resistance to disease.

    The group also exists as a forum to discuss the clinically proven health benefits of Ai/E10 and AG-Immune. Ai/E10, a patented and proprietary immune system modulator found in combination with nutritional fuels in AG-Immune, supplies the specific coded information your immune system needs to know how to respond without over stimulation."  Yahoo! group.
  • InflammatoryBowelDiseases · This list is designed for sufferers of Crohn's Disease and Ulcerative Colitis. A place of support and sharing of experiences.  "This list is designed for sufferers of Crohn's Disease and Ulcerative Colitis. A place of support and sharing of experiences."  Yahoo! group.    
  • Intestine City Crohnies- IBD and Crohns.  "This is a gathering place for those with Crohn's Disease or other IBD to share thoughts, prayers, advice, and fun with fellow Crohnies. No need to be embarrassed here.  Yahoo! group.  
  • Jessica's Crohn's support Group - A place for Support and Caring.  "This Site is for people suffering Crohn's and their friends and family or for anyone who has an interest in the disease. 
    People of any ages are welcome."  Yahoo! group.
  • Living with Crohns in PA.  "I am trying to organize a group of Local Upper Bucks, Montgomery Counties of people that are suffering from Crohn's Disease and would like to get together for support groups or just to chat."  Yahoo! group. 
  • Lets Talk Crohns - A place to talk about Crohn's Disease.  "A Club for people with Crohn's Disease or anyone wanting to learn about Crohn's Disease. Come on in and enjoy the conversation."  Yahoo! group.
  • Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.            
  • Minnesota_crohns · For those dealing with Crohn's disease.  "This group is for people from Minnesota or the surrounding area who are dealing with Crohn's disease. Talk about your experiences so that others with this may learn from you or feel free to ask questions."  Yahoo! group.
  • NeuroModulation Technique.  "NeuroModulation Technique is a method of healing unique in all the world of health care. It is based upon widely accepted neurophysiological models. There are no vials, special reflex points, or potions used. We approach very literally the proposition that the closest analogy to the human nervous system is the computer. We use muscle response testing to access, assess the autonomic nervous system, and modulate the performance of autonomic function with specific semantic reprogramming and debugging scripts.

    NeuroModulation produces instantaneous and profound results in virtually all forms of illness provoked by faults in the function of the autonomic nervous system. This list includes all allergies, chronic degenerative diseases such as all forms of arthritis; multiple sclerosis and other demyelenating diseases; Crohn's disease, IBS, and gastric reflux disease; all autoimmune diseases; acute and chronic musculoskeletal conditions; emotional, psychological and sensory/motor neurologic disturbances."  Yahoo! group.
  • Lowdosenaltrexone · Low Dose Naltrexone.  "The Low Dose Naltrexone (LDN) group is an announcement and discussion group for those interested in LDN, and who wish to be notified about updates to the Low Dose Naltrexone website (www.lowdosenaltrexone.org).

    We expect that official announcements to the group will be fairly infrequent, typically not more than one per month.

    Group members not wishing to receive general discussion e-mail from other members may set their message delivery option to "Special Notices" when joining, or by logging on to the LDN Yahoo Group site and clicking on "Edit My Membership."

    About LDN: FDA-approved naltrexone, in a low dose, can up-regulate the immune system -- helping those with HIV/AIDS, cancer, MS, and autoimmune diseases such as systemic lupus, rheumatoid arthritis, Behcet's syndrome, Wegener's granulomatosis, bullous pemphigoid, psoriasis, and Crohn's disease."  Yahoo! group.
  • Natural_healing.  "This group is for people who have come to understand the importance of nature in healing, ie diet, natural supplements, meditation, affirmations... Many people here will have lost confidence in doctors who continue to prescribe medicines that mask symptoms but cannot heal, as well as surgeons who cut, slash, and burn bodies that are designed to heal naturally. The originator of this group believes that natural means are the only way to effect cures from illness. Detoxing through juicing, flushes, and other dietary changes are all part of discussion. All information or questions are welcome, concerning any illness from cancer to candidiasis, lupus, fibromyalgia, ms, heart disease, etc. Testimonials from people who have naturally healed themselves of any illness are welcome. I, Kelly, have lupus, Crohn's, depression, candidiasis, and have started this group to help other people like myself, as well as myself. There will be articles full of info regarding alternative medicine, natural protocols for cancer, diets for IBD and candida, herbs, supplement info, and more."  Yahoo! group.
  • Paleolithic Diet.  "This is a group for people who are following, or interested in, paleolithic nutrition (also known as the stone-age or caveman diet, and as Paleo Diet after the book by Loren Cordain).

    People are welcome to discuss diet-related health problems and weight loss. Obesity is obviously a serious and widespread diet-related health problem, but it is not the only one! Other problems you may want to discuss are chronic fatigue, leaky gut, Crohn's disease, diabetes, hyperhidrosis, hypertension, and anything else you suspect is caused by diet."  Yahoo! group.
  • Remicade · Remicade Infusion Group.  "We will discuss our good and bad experiences with infliximab ( Remicade ®) and its side effects.
    CDP870, Natalizumab, ALX-0600, Adalimumab, GM-CSF, daclizumab and visilizumab ( Nuvion ®) which are newer drugs in trials will be discussed (if people wish) also.  Crohn's Disease and Rheumatoid Arthritis will be discussed also."  Yahoo! group.
  • SCD Recipe Exchange & Collection.  "A group to exchange & collect recipes for the Specific Carbohgydrate Diet.

    The Specific Carbohydrate Diet is the diet that has helped 1000s of sufferers of Ulcerative Colitis and Crohn's Disease to regain good health and eventually being free of medicines and surgery."  Yahoo! group.
  • Teens_autoimmune · Autoimmune Teens.  "Hi, this is a group for teens suffering from different autoimmune disorders/disease. Please feel free to join. It is open to anyone in the teen years. That is from 10-25 (so that give you a bit of an age range!) So feel free to post your message here and help each other out! Some of the autoimmune disorders/disease are addison’s disease, chronic fatigue syndrome, crohn’s and colitis, diabetes, fibromayalgia, lupus, meniere’s disease, multiple sclerosis, myasthenia gravis, saroidosis, scleroderma, vitiligo, Eosinophilic Gastroenteritis, Eosinophilic Esophagitis, Eosinophilic Colitis. Yes it is a long list but with your help we all can be great friends and overcome what we have together! Thanks."  Yahoo! group.
          

News

Organizations

  • Crohn's & Colitis Foundation of America, Inc.  "To cure and prevent Crohn's disease and ulcerative colitis through research, and to improve the quality of life of children and adults affected by these digestive diseases through education and support.

    CCFA sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely by contributions from the public."
  • Reach Out for Youth with Ileitis and Colitis, Inc.  "Reach Out for Youth with Ileitis and Colitis is a non-profit support group for families of youngsters with IBD. Founded in 1979, the organization has helped hundreds of families cope with the effects of IBD. The self-help group’s goals include providing educational and emotional support to patients and their families, and organizing fund-raising efforts to promote research into the causes and treatment of IBD."
  • Pediatric Crohn’s & Colitis Association, IncComment: This organization appears to be defunct.  Their Web site was last updated in 2002.
  • United Ostomy Association, Inc (UOA).  "Through the last four decades, the United Ostomy Association (UOA) has had a profound influence on improving the quality of life for individuals with an ostomy or continent diversion. It is estimated that 750,000 Americans are living with an ostomy and that 75,000 new surgeries are performed each year.

    UOA is making a difference in a number of ways, including patient-to-patient support, educational literature, a helping cyber-community, advocacy and promoting earlier detection of colon cancer."

Patient Web Sites

  • Teens with Crohn’s Disease.  "Welcome! I was first diagnosed with Crohn's Disease nearly ten years ago and, being a teenager at the time, I found it difficult to talk to others about the disease that did not have it. I created this site as a place to share stories and information - for teens, by teens - with Crohn's Disease, Colitis, or IBS. Apparently I've made a big impact here. I'm glad to do what I can to make a difference.

    On this page, I will post experiences we teens have had with the disease. Any advice you may wish to pass on to others is also welcome. Since most all of us follow special diets, there is a recipe section. I have tried many of the recipes listed here, and several have become my favorites. Try them and let me know what you think..."

Photographs

Videos

 

If you found the information on this page useful, please donate to help us add more information.

 
Google
Web www.medconsumer.info

Link to Medconsumer.info
© 2007 Max Lent Communications

Other sites published by Max Lent Communications