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If you join one of these support groups, please mention
that you found their group through Medconsumer.info.
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A Crohn's Diet Discussion. "This club is about
diet and how it affects Crohn's Disease/UC. Specifically,
the Specific Carbohydrate Diet as defined by Elaine
Gottschall in the book, Breaking the
Vicious Cycle. Yahoo! group.
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Amazon Lifeline. "Amazon Lifeline is a support
and social group for lesbian, bisexual and transgendered
women who are living with chronic illness or disability.
The group provides a safe, accepting and supportive
friendship circle--a source of encouragement, connection,
laughter, information, and companionship.
What kind of chronic illnesses and disabilities are
welcome in this group? All kinds. For example: Sleep
apnea, rheumatoid arthritis, psychiatric illnesses,
physical disabilities, Parkinson’s disease, osteoporosis,
OA, MS, migraines, Lyme disease, lupus, IBS, IBD,
hypo/hyperthyroidism, hypertension, hepatitis, gout,
fibromyalgia, epilepsy, diabetes, depression, deafness,
cystic fibrosis, Crohn’s disease, colitis, chronic pain,
chronic fatigue syndrome, cancer, blindness, bipolar
disorder, autoimmune disorders, asthma, arthritis,
allergies, and AIDS-HIV..." Yahoo! group.
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BeingSick · A global community of loving people who
understand what its like to be sick or care for a loved
one. "We are a community of loving supportive people
who understand what its like to be sick. We live with
illness, injury, disability, or care for those that do.
This group is a place where you are free to be yourself.
Share your frustrations about being sick, friendships,
family, and just about anything! We are the family who
understands when no one else does! We live your life too!
You are welcome to post in HTML, colors, send links, web
pages, poems, inspiration, e-cards, jokes, chat in our
chat room anytime! We are non-denominational, welcoming
all races, ages, religions and cultures. We know how tough
life is being sick, and we care. There is support for you
here anytime you need us. You are not alone." Yahoo!
group.
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Caring4KidsWithIBD. "This is a general support
list for parents of children with Colitis, Crohn's Disease
and IBD. Anyone is welcome to join. Hopefully we can share
information, offer ideas and find support." Yahoo!
group.
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CasiClubhouse · Casi's Clubhouse Autism Support Group.
"Casi's Clubhouse is a support group, discussing ANYTHING
related to vaccine injury. Topics include autism,
ADD/ADHD, RETTS Syndrome, Lupus, Crohn's Disease, MS,
Alzheimer's, OCD, Arthritis,
Diabetes, ALS, IBS, Bi-Polar, Lyme
Disease, Parkinson's, Fibromyalgia, Chronic Fatigue
Syndrome, Thyroiditis, SIDS, SBS and many, many more! The
clubhouse was started in loving memory of Casi Renee Oakes
(June 3, 1995 - June 13, 1999). The messages posted on the
clubhouse are not affiliated with any organization and the
information obtained, is not considered to be medical or
legal advice. Please learn from our mistake and "Educate
BEFORE You Vaccinate!" YOUR CHILDREN...YOUR CHOICE...YOUR
RIGHTS... For more education and support, please visit
www.CasiQuest.org,
www.AutismAutoimmunityProject.org, and/or
www.VacInfo.org.
Yahoo! group.
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Cdsicrohnssupportclub. "Welcome. This club is
for Crohn's disease patients and their family and friends.
It is a great place for support, friendship and
information from other Crohnies. Please join us, you will
make many new friends here." Yahoo! group.
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Colitis-crohns. "Ulcerative Colitis (UC)/Colitus,
Crohn's disease (CD) , Irritable Bowel Syndrome (IBS),
Infalmmatory Bowel Disease (IBD) -support e-mail
group/community We are people sharing information on
Curing IBD and IBS This List is NON-COMMERCIAL, we are not
selling cures, supplements or books. We are only sharing
information. Subjets: - Diet for IBD, Specific
Carbohydrate Diet (SCD). - Blood Type Diet (ER4YT) - Paleo
diet (cave man diet) - Book "Breaking the Vicious Cycle",
by Elaine Gottschall. - parasites - bowel cleanse - liver
and gallbladder gallstones cleanse - dental cleanup -
Cleansing bowel, kidney cleanse(kidney stones), Liver and
Gallbladder cleanse,massage, Herbal formulas, Parasite
killing herbs, enema, Toxins, Dental cleanse (amalgam,
nickel, root fillings, cavitations, bacteria), Diet (Blood
Type Diet, Max B. Gerson diet, ...),Water, Supplements (
Flaxseed oil Colloidal minerals, Calcium, Magnesium,
Vitamin D, Vitamin E, Selenium Coenzyme Q10 Colloidal
minerals chelation therapy Vitamins Enzymes seaweed kelp
kombu shiitake miso), Foods to avoid ( cholesterol, sugar
aspartame meat and saturated fats, eggs,... )."
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Colitiscrohns · IBD - IBS - Colitis - Crohns - Colitus.
"Ulcerative Colitis (UC)/Colitus, Crohn's disease (CD) ,
Irritable Bowel Syndrome (IBS),
Inflammatory Bowel Disease (IBD) -support e-mail
group/community We are people sharing information on
Curing IBD and IBS This List is NON-COMMERCIAL, we are not
selling cures, supplements or books. We are only sharing
information. Subjects: - Diet for IBD,
Specific Carbohydrate Diet (SCD). - Blood Type Diet
(ER4YT) - Paleo diet (cave man diet) - Book "Breaking the
Vicious Cycle", by Elaine Gottschall. - parasites -
bowel cleanse - liver and gallbladder gallstones cleanse -
dental cleanup - Cleansing bowel, kidney cleanse (kidney
stones), Liver and Gallbladder cleanse, massage, Herbal
formulas, Parasite killing herbs, enema, Toxins, Dental
cleanse (amalgam, nickel, root fillings, cavitations,
bacteria), Diet (Blood Type Diet, Max B. Gerson diet,
...),Water, Supplements ( Flaxseed oil Colloidal minerals,
Calcium, Magnesium, Vitamin D, Vitamin E, Selenium
Coenzyme Q10 Colloidal minerals chelation therapy Vitamins
Enzymes seaweed kelp kombu shiitake miso), Foods to avoid
( cholesterol, sugar aspartame meat and saturated fats,
eggs,... ). Yahoo! group.
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Crohn's Group. "This list is to provide a forum
for victims of Crohn's Disease (and related illnesses) to
discuss their illness, advances in treatments and
medications, news about the search for a cure, and general
discussions on coping with the illness. Crohn's patients,
as well as family members and friends of Crohn's patients
are welcome to join in the discussions."Yahoo! group.
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Crohns_crossing_for_christians · Crohn's Crossing for
Christians. "Welcome to Crohn's Crossing for
Christians. This group is designed for Christians fighting
Crohn's disease either in their own life or in the life of
a loved one. Come share with fellow believers in Christ
the burden of the cross that those of us touched by
Crohn's disease bear. We'll talk with you, laugh with you,
cry with you, and pray with you."
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Crohns_group · Crohn's Disease. "This group is
for crohn's disease victims, or friends or family of
someone with the disease. To chat hang out, ask
advice, compare experiences, questions, concerns, or
anything you feel like sharing."
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Crohnsdiseaseandweightloss · Crohn's Disease And Weight
Loss - A Place To Deal With Weight Loss Due To
Crohn's. "Hello! My name is Nora. I am 18 years old
and a person with Crohn's Disease. Lately I have been
looking for a club that I could go to over here in Yahoo
that was about people who were loosing weight due to
Crohn's Disease and I could not find one. People with
Crohn's Disease tend to loose a lot of weight so I thought
this would be a good club for those who need support
through it. I am also the founder of the Crohn's Disease
Awareness Club over here in Yahoo! so if you want feel
free to check it out. Thanks for stopping by."
Yahoo! group.
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Crohns-friends. "This is a list for people with
Crohn's Disease, IBD, Colitis.
Anyone is welcome to join. I started this list because of
the wide volume of traffic on my website that wished
contact with other people. I hope it is as successful as
the web page has been.
Enjoy share your thoughts, ideas, problems, questions.
This group produces a lot of emails for a less chatty
group consider joining Crohns-updates a second group I
have created." Yahoo! group.
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Crohns_n_colitis. "This list is intended for
those who suffer from the chronic illnesses, Crohn's
Disease and Ulcerative Colitis. I hope to be able to
provide you with information about the diseases, and be of
any help to those of you who suffer from these terrible
afflictions."
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Crohn's Updates. "This group is designed to be
less "chatty" than Crohns-Friends. So if you like to chat
please join both groups or the other. This will be for
updates and things we learn about Crohn's Disease."
Yahoo! group.
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CrohnsWellness · A list for people with Crohn's
Disease. "Mutual support for people with Crohn's
disease.
This list is for people who suffer from Crohn's Disease
and their friends and family. Please introduce yourself to
the group. Tell us your name, where you live, and how long
you've had Crohn's." Yahoo! group.
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Crohn's Zone. "Crohn's Zone is a support and
information network for people with Crohn's disease,
ulcerative colitis or any other form of inflammatory bowel
disease.
We share information, personal advice and support with
those living with IBD. We all suffer from IBD, so the
forum is open to discussions about topics you would
otherwise feel embarrassed about approaching. Whether
you're newly diagnosed or have had IBD for years, you will
be welcomed here by our friendly and helpful members.
UK IBD community. " Yahoo! group.
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Chronic Boutique. " The Chronic Boutique
(Chronic Pain Boutique) is a caring welcoming group open
to anyone with chronic pain and are taking all pain
medications including narcotic pain medications such as :
Oxycontin, OxyFast ect.. used to treat conditions listed
but not limited to: Chronic intractable abdominal pain,
Irritable bowl syndrome, Crohn's disease,
Colitis/ulcerative colitis, Cancer, Chronic Fatigue
Syndrome, Reflex Sympathetic Dystrophy, Fibromyalgia,
Back/disc problems/T's & L's, Arthritis and Lupus and. If
you or someone you know suffers with chronic pain please
join this forum. No commercial posts of any kind are
allowed. Chronic Boutique is a Moderated group and is open
to the public." Yahoo! group.
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Enduring Crohn's. "A group for people with
Crohn's Disease or any of the other Inflammatory Bowel
Diseases (IBDs). Other IBDs include Ulcerative Colitis and
Irritable Bowel Syndrome. We also encourage you to join if
you have a loved one or friend who has an Inflammatory
Bowel Disease. It would be a great way to gain a better
understanding of what it is like for them to live with
their illness." Yahoo! group.
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GutitOut · Gut It Out. "A group for young teens
and adults (12 - 25 years old) struggling with Crohn's
Disease, Ulcerative Colitis, and IBD.
Support 24/7, lots of ideas on coping with these vicious
diseases, the latest on cures/drugs and mainly a place
where you can connect with others your age and finally
have people understand what a pain it is to live with
this."
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HelpforDejana · Help for Dejana. "As nothing can
stop the sand in the hour glass to go to the bottom half
of it, so my sickness nothing, except the surgery, can
stop from winning over me. My name is Dejana Lekic. My
normal life was interrupted in the very beginning, 16
years ago, when I got a severe form of Crohn's disease,
inflammation of intestines with cause unknown. Since then,
some would say by the struck of faith, because my sickness
was not understood and severity of it was underestimated I
had to undergo surgeries 20 times. Each surgery had to
remove a little bit of the intestines and now I have just
50 centimetres of small intestines. Everything else, small
intestines, large intestines, gallbladder. had to be
removed. That is how I became the only patient of this
kind in Yugoslavia."
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Jewish-IBD. "This group is designed specifically
for Jewish people with Inflammatory Bowel Diseases,
namely, Crohn's Disease and Ulcerative Colitis.
Yahoo! group.
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Ibdcanada · IBD-Canada. "This group is for those
affected by IBD- Ulcerative Colitis and Crohn's Disease.
Use this group as: a means to support, news, tips and
advice for all things IBD." Yahoo! group.
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Ibd-news · IBD News. "A filter of any and all
news related to Inflammatory Bowel
Disease (i.e. Crohn's and Ulcerative Colitis). Keep
up-to-date with the latest developments in research and
therapy." Yahoo! group.
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IBD_Spirituality · IBD Wellness and Spirituality.
"Crohn's is the best thing that has ever happened to me.
For people interested in exploring and discussing the
impact that the Mind, Body, Spirit Connection has in the
health of Crohn's and Colitis. To share ideas, ask
questions, receive advice and share your experiences. I
have Crohn's disease and am in consistent remission based
on things I have learned about my bowel and spirituality.
This has proven to be the single greatest factor in my
healing. I have much to learn, and I know you can teach
me."
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Immune_System_Health. "This group will discuss
these and other health concerns related to immune system
function, offering support, encouragement and practical
advice for those looking to improve the health of their
immune system to address either a specific health concern
or to simply improve overall health and resistance to
disease.
The group also exists as a forum to discuss the clinically
proven health benefits of Immunocal™, and the strategy of
boosting intracellular glutathione levels in order to
strengthen the entire immune system. Immunocal™ has been
clinically proven (see PDR, see Medline) to replenish the
glutathione (GSH) levels present in all cells and allows
for the body's full immune response. By optimizing and
sustaining glutathione (GSH) levels in the cells,
Immunocal™ also works to combat the damaging effects of
free-radicals, helps to detoxify the body, and enhances
the efficacy of external antioxidants with NO known
side-effects.
Group members may post questions or comments related to
the immune system and associated health conditions, as
well as questions and/or comments regarding Immunocal."
Yahoo! group.
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Immune-trigger · Immune System & Autism, Allergies,
Arthritis, Autoimmune, Cancer, Candida, Chronic Fatigue,
Fibromyalgia, Herpes, OCD and more. "Your
greatest defense against illness and disease is to promote
a strong and healthy immune system. Health conditions
related to immune system dysfunction include Allergies,
Arthritis,
Asthma, Autism, Autoimmune
Disease, Cancer, Candida, Chronic
Fatigue Syndrome, Colds,
Crohn's Disease, Epstein-Barr Virus, Fibromyalgia,
Heart Disease,
Hepatitis C, Herpes, HIV/AIDS,
Infection, Influenza,
Insulin-Dependent Diabetes, Irritable
Bowel Syndrome, Lupus, Multiple Sclerosis, Obsessive
Compulsive Disorder, Otitis Media, Rheumatism, Sinusitis,
Tourette's Syndrome, and more.
This group will discuss these and other health concerns
related to immune system function, offering support,
encouragement and practical advice for those looking to
improve the health of their immune system to address
either a specific health concern or to simply improve
overall health and resistance to disease.
The group also exists as a forum to discuss the clinically
proven health benefits of Ai/E10 and AG-Immune. Ai/E10, a
patented and proprietary immune system modulator found in
combination with nutritional fuels in AG-Immune, supplies
the specific coded information your immune system needs to
know how to respond without over stimulation."
Yahoo! group.
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InflammatoryBowelDiseases · This list is designed for
sufferers of Crohn's Disease and Ulcerative Colitis. A
place of support and sharing of experiences.
"This list is designed for sufferers of Crohn's Disease
and Ulcerative Colitis. A place of support and sharing of
experiences." Yahoo! group.
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Intestine City Crohnies- IBD and Crohns. "This
is a gathering place for those with Crohn's Disease or
other IBD to share thoughts, prayers, advice, and fun with
fellow Crohnies. No need to be embarrassed here.
Yahoo! group.
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Jessica's Crohn's support Group - A place for Support and
Caring. "This Site is for people suffering
Crohn's and their friends and family or for anyone who has
an interest in the disease.
People of any ages are welcome." Yahoo! group.
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Living with Crohns in PA. "I am trying to
organize a group of Local Upper Bucks, Montgomery Counties
of people that are suffering from Crohn's Disease and
would like to get together for support groups or just to
chat." Yahoo! group.
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Lets Talk Crohns - A place to talk about Crohn's Disease.
"A Club for people with Crohn's Disease or anyone wanting
to learn about Crohn's Disease. Come on in and enjoy the
conversation." Yahoo! group.
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Medconsumerinfo. "Medconsumer.info is your
starting point for searching the Web for medical
information. This forum exists for you to discuss, ask
questions, and answer questions about any aspect of
health, healthcare industry, and any aspect of being a
patient. Please take whatever advice you receive through
this forum to your doctor before changing or initiating
any medically-related behavior." Yahoo! group.
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Minnesota_crohns · For those dealing with Crohn's
disease. "This group is for people from Minnesota or
the surrounding area who are dealing with Crohn's disease.
Talk about your experiences so that others with this may
learn from you or feel free to ask questions."
Yahoo! group.
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NeuroModulation Technique. "NeuroModulation
Technique is a method of healing unique in all the world
of health care. It is based upon widely accepted
neurophysiological models. There are no vials, special
reflex points, or potions used. We approach very literally
the proposition that the closest analogy to the human
nervous system is the computer. We use muscle response
testing to access, assess the autonomic nervous system,
and modulate the performance of autonomic function with
specific semantic reprogramming and debugging scripts.
NeuroModulation produces instantaneous and profound
results in virtually all forms of illness provoked by
faults in the function of the autonomic nervous system.
This list includes all allergies, chronic degenerative
diseases such as all forms of
arthritis; multiple sclerosis and other demyelenating
diseases; Crohn's disease, IBS, and
gastric reflux disease; all autoimmune diseases; acute and
chronic musculoskeletal conditions; emotional,
psychological and sensory/motor neurologic disturbances."
Yahoo! group.
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Lowdosenaltrexone · Low Dose Naltrexone. "The
Low Dose Naltrexone (LDN) group is an announcement and
discussion group for those interested in LDN, and who wish
to be notified about updates to the Low Dose Naltrexone
website (www.lowdosenaltrexone.org).
We expect that official announcements to the group will be
fairly infrequent, typically not more than one per month.
Group members not wishing to receive general discussion
e-mail from other members may set their message delivery
option to "Special Notices" when joining, or by logging on
to the LDN Yahoo Group site and clicking on "Edit My
Membership."
About LDN: FDA-approved naltrexone, in a low dose, can
up-regulate the immune system -- helping those with
HIV/AIDS, cancer, MS, and autoimmune diseases such as
systemic lupus, rheumatoid arthritis, Behcet's syndrome,
Wegener's granulomatosis, bullous pemphigoid, psoriasis,
and Crohn's disease." Yahoo! group.
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Natural_healing. "This group is for people who
have come to understand the importance of nature in
healing, ie diet, natural supplements, meditation,
affirmations... Many people here will have lost confidence
in doctors who continue to prescribe medicines that mask
symptoms but cannot heal, as well as surgeons who cut,
slash, and burn bodies that are designed to heal
naturally. The originator of this group believes that
natural means are the only way to effect cures from
illness. Detoxing through juicing, flushes, and other
dietary changes are all part of discussion. All
information or questions are welcome, concerning any
illness from cancer to candidiasis, lupus, fibromyalgia,
ms, heart disease, etc. Testimonials from people who have
naturally healed themselves of any illness are welcome. I,
Kelly, have lupus, Crohn's, depression, candidiasis, and
have started this group to help other people like myself,
as well as myself. There will be articles full of info
regarding alternative medicine, natural protocols for
cancer, diets for IBD and candida, herbs, supplement info,
and more." Yahoo! group.
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Paleolithic Diet. "This is a group for people
who are following, or interested in, paleolithic nutrition
(also known as the stone-age or caveman diet, and as Paleo Diet
after the book by Loren Cordain).
People are welcome to discuss diet-related health problems
and weight loss. Obesity is obviously a serious and
widespread diet-related health problem, but it is not the
only one! Other problems you may want to discuss are
chronic fatigue, leaky gut, Crohn's disease,
diabetes, hyperhidrosis, hypertension, and anything else you suspect
is caused by diet." Yahoo! group.
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Remicade · Remicade Infusion Group. "We will
discuss our good and bad experiences with infliximab (
Remicade ®) and its side effects.
CDP870, Natalizumab, ALX-0600, Adalimumab, GM-CSF,
daclizumab and visilizumab ( Nuvion ®) which are newer
drugs in trials will be discussed (if people wish) also.
Crohn's Disease and Rheumatoid Arthritis will be discussed
also." Yahoo! group.
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SCD Recipe Exchange & Collection. "A group to
exchange & collect recipes for the Specific Carbohgydrate
Diet.
The Specific Carbohydrate Diet is the diet that has helped
1000s of sufferers of Ulcerative Colitis and Crohn's
Disease to regain good health and eventually being free of
medicines and surgery." Yahoo! group.
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Teens_autoimmune · Autoimmune Teens. "Hi, this
is a group for teens suffering from different autoimmune
disorders/disease. Please feel free to join. It is open to
anyone in the teen years. That is from 10-25 (so that give
you a bit of an age range!) So feel free to post your
message here and help each other out! Some of the
autoimmune disorders/disease are addison’s disease,
chronic fatigue syndrome, crohn’s and colitis, diabetes,
fibromayalgia, lupus, meniere’s disease, multiple
sclerosis, myasthenia gravis, saroidosis, scleroderma,
vitiligo, Eosinophilic Gastroenteritis, Eosinophilic
Esophagitis, Eosinophilic Colitis. Yes it is a long list
but with your help we all can be great friends and
overcome what we have together! Thanks." Yahoo!
group.
News
Organizations
- Crohn's & Colitis
Foundation of America, Inc. "To cure and prevent
Crohn's disease and ulcerative colitis through research,
and to improve the quality of life of children and adults
affected by these digestive diseases through education and
support.
CCFA sponsors basic and clinical research of the highest
quality. The foundation also offers a wide range of
educational programs for patients and health-care
professionals, and provides supportive services to help
people cope with these chronic intestinal diseases. These
programs are supported solely by contributions from the
public."
- Reach Out
for Youth with Ileitis and Colitis, Inc. "Reach
Out for Youth with Ileitis and Colitis is a non-profit
support group for families of youngsters with IBD. Founded
in 1979, the organization has helped hundreds of families
cope with the effects of IBD. The self-help group’s goals
include providing educational and emotional support to
patients and their families, and organizing fund-raising
efforts to promote research into the causes and treatment
of IBD."
- Pediatric Crohn’s
& Colitis Association, Inc. Comment: This
organization appears to be defunct. Their Web site
was last updated in 2002.
- United Ostomy
Association, Inc (UOA). "Through the last four
decades, the United Ostomy Association (UOA) has had a
profound influence on improving the quality of life for
individuals with an ostomy or continent diversion. It is
estimated that 750,000 Americans are living with an ostomy
and that 75,000 new surgeries are performed each year.
UOA is making a difference in a number of ways, including
patient-to-patient support, educational literature, a
helping cyber-community, advocacy and promoting earlier
detection of colon cancer."
Patient Web Sites
- Teens
with Crohn’s Disease. "Welcome! I was first
diagnosed with Crohn's Disease nearly ten years ago and,
being a teenager at the time, I found it difficult to talk
to others about the disease that did not have it. I
created this site as a place to share stories and
information - for teens, by teens - with Crohn's Disease,
Colitis, or IBS. Apparently I've made a big impact here.
I'm glad to do what I can to make a difference.
On this page, I will post experiences we teens have had
with the disease. Any advice you may wish to pass on to
others is also welcome. Since most all of us follow
special diets, there is a recipe section. I have tried
many of the recipes listed here, and several have become
my favorites. Try them and let me know what you think..."
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