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Celiac Disease Forums

(also termed non-tropical sprue, celiac disease and gluten intolerance)

Request or suggest a link. 

Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

  • BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group.  
  • Celiacs · For those affected by celiac sprue.  "If you have celiac sprue or love someone that does. For recipes, news, and support."  Yahoo! group.
  • CeliACTIONetwork.  "This mailing List is a membership, announcement-only list for those interested in Celiac Disease and Dermatitis Herpetiformis who want to have a positive impact on the food manufacturing and service industry."   
  • Celiacbayarea.  "Our group is based in Santa Cruz, CA and Bay Area. We are here to support one another in our journey to better health in living with Celiac Disease. In this forum we will offer each other information, recipes, tips/hints, ideas, up-coming events, information and of course support for each other."   Yahoo! group.     
  • Celiac_disease · Celiac Disease.  "This group is open to anyone interested in making friends, sharing information and providing support for persons affected by this disorder."  Yahoo! group. 
  • Celiacglutenfree · Celiac Disease and a Gluten Free Diet.  "This is a group for those with Celiac Disease and living with a gluten free diet. It is always nice to interact with others who have the same problems and interests and solutions to living healthy with Celiac Disease. My goal is to make lots of new contacts and share what we know about what we live with daily."  Yahoo! group. 
  • Celiacs_in_Alaska · Celiacs In Alaska.  "This is a support group for Celiacs in Alaska. It is open to all who want to share information with other diagnosed Celiacs."  Yahoo! group. 
  • Celiacmn · Celiac Minnesota.  "For people that have celiac disease and live in Minnesota."  
  • celiacnet · Celiac support network in India.  "This group is for people in India who are connected to the allergy to Gluten (other names being Celiac, Non-Tropical Sprue, Gluten Sensitivity, Gluten Intolerance). The connection could be as a patient, doctor, activist, researcher, bureaucrat, politician(!), relative etc."  Yahoo! group.     
  • Celiac_Sprue · Support for "Celiac Sprue."  "This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder."  Yahoo! group.
  • Celiacsprue · Celiac Sprue.  "People who have Celiac Sprue (allergy to wheat and Glutten). Let's help each other with suggestions on foods! If you life in the Richmond VA area please contact me as I own a local support group: CSA/Richmond Celiac Sprue Support Group #87." 
  • Celiacsupport · Gluten Intolerance / Celiac Disease.  "A group for anyone with gluten intolerance, or those who want to know more about Celiac Disease. We welcome links to Celiac sites, gluten free foods, restaurants, recipes, and general information on Celiac Disease. You're not alone, and we can help each other."  Yahoo! group.  
  • Celiac_teens · Celiac Teens.  "This group is for all teens dealing with celiac disease or gluten intolerance. Being a teenager is hard enough without having a life-long restrictive diet! The purpose of this group is to share stories, recipes, idea, and most of all, support. We are all going through a lot of the same things, and having someone to lean on during the not-so-great times is a BIG help. So chat, learn, and make new friends here!"  Yahoo! group. 
  • Celiac_toronto · Celiac Toronto."This is a group for people from Toronto and the surrounding area who have a problem with Gluten (Celiac or DH). My intention for trying to start this group is to try and attract as many people as possible from this area, who have this condition. The purpose is to exchange knowledge, ideas, receipts, information etc. I found other Celiac groups very helpful, but most of these are located elsewhere and a lot of the help and suggestions were not applicable to this area."  Yahoo! group. 
  • CFAlliance · CFIDS, CFS, ME, FM & related illnesses.  "Welcome to our Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM) info website! All info posted on this website is ONLY about CFS/ME/FM and their related illnesses such as IBS, RLS, TMJ, Lupus, Sjogren's, Candida, Raynaud's, Celiac, Sinusitis and MCS. No flaming, ads or solicitations. Helpful health info and caring support are posted here daily."
  • Cincinnaticeliacs · Cincinnati Celiac Support Group.  "CCSG is a support group for those with celiac disease or gluten intolerance and their families. We share information on current research and educate each other on maintaining a gluten-free diet. We also plan fun social events with our members." 
  • Clubceliac · Welcome to Club Celiac for Children.  "Club Celiac is a great place for children who have Celiac Sprue to trade information, recipes, and support.
    Come join our mailing list and have a great time meeting other individuals with Celiac Sprue."  Yahoo! group.
  • Crceliac · Cedar Rapids Celiac.  "Our group is based in Cedar Rapids, IA and surrounding areas. We are here to support one another in our journey to better health in living with Celiac Disease. In this forum we will offer each other information, recipes, tips/hints, ideas, up-coming event information and of course support for each other. Other auto-immune and allergy/intolerance information RELATED to Celiac is welcome."    
  • Dallasarearock · Dallas Area R.O.C.K.  "This is the electronic version of our support group named R.O.C.K. It (R.O.C.K. - Raising Our Celiac Kids) is a free support group for parents, families, and friends of kids on the gluten-free diet because of celiac disease, gluten intolerance, autism, ADD/ADHD, allergies, or personal preference. We concentrate on dealing with the unique challenges that families of wheat-free/gluten-free kids face,..."
  • DCCeliac · Washington DC Area Celiac Support Group.  "Events and Information of interest to people with Celiac Disease / Sprue or parents of children with Celiac Disease in the Washington, D.C., Northern Virginia or Suburban Maryland area."  Yahoo! group. 
  • Glutenfreearizona · Gluten Free Arizona.  "This mailing list offers support to the gluten-free and wheat-free community in Arizona. This includes adults and children who avoid gluten due to celiac disease, gluten intolerance, dermatitis herpetiformis, autism, multiple sclerosis, rheumatoid arthritis, and wheat allergies. We are here to promote awareness of gluten-free issues, announce events in the gluten-free community, and assist with member concerns and questions. As a chapter of the Gluten Intolerance Group, we offer education through special events in our community and family-friendly support group meetings in Phoenix/Chandler." 
  • Glutenfreekitchen · Welcome to The Gluten Free Kitchen.  "Welcome to The Gluten Free Kitchen's Interactive Mailing List. We offer Information, Recipes, and Support to individuals who suffer from Celiac Sprue, Dermatitis Herpetiformis, and other food related allergies."  Yahoo! group. 
  • Glutenfreeinwny · Gluten Free In WNY Information Group.  "Our Mission is to increase awareness by providing current, accurate, information, and education, as well as support to persons with gluten intolerance diseases, such as celiac disease and dermatitis herpetiformis, their families, health care professionals and the general public In the Greater Buffalo and Niagara Falls NY area."  Yahoo! group.
  • The gluten free message board,Coeliac and D H
  • GlutenSensitivity · Gluten Sensitivity.  "Welcome to the Gluten Sensitivity Support Group. It is dedicated to information and support for those who have all types of celiac disease and/or gluten sensitivity and those who love them."
  • HaywoodCeliac · Haywood County Celiac Support.  "This is a group for the gluten-free and/or dairy-free of Haywood County, North Carolina." 
  • Healing_WellnessTrain · Healing on Wellness Train.  "The Wellness Train Group welcomes you. This is a support group for people suffering from chronic pain and illness. We care, we share and we hold hands and hearts here. We post information, our own stories, coping tips, and matters of interest to people who understand the isolation that comes from suffering from daily pain, exhaustion and illnesses such as FM, CFS, Lyme, Celiac, Arthritis, DDD, Lupus, etc."
  • Houstonceliacs · Houston Celiacs.  "Houston Celiacs is an email group for those with Celiac Disease in the Houston area as well as surrounding areas. I hope this group will allow us to support one another, share stories, stay-in-touch and educate each other on Celiac Disease. Parents and other family or friends of those with Celiac Disease are welcome to join."
  • KIDD-Talk · Kids w/ Inflammatory Digestive Diseases.  "A support forum for parents whose children are living with inflammatory digestive diseases, including, but not limited to, Eosinophilic Diseases, Celiac Disease, Crohns Disease, Ulcerative Colitis, and GERD."
  • Kidswithceliac · Children with Celiac Disease.  "This group is for parents, grandparents, or friends that are in contact with kids with celiac disease and additional food allergies that limit their diets along with a gluten free diet. This group is for advice, learning, recipes, venting, and support for this long and challenging disease."
  • Lvceliacsupport · LV Celiac Disease Support Group.  "Welcome to the Celiac Disease support group for Las Vegas. Celiac Disease is also known as gluten sensitive enteropathy, gluten intolerance or celiac sprue."  Yahoo! group.
  • Livingwheatandglutenfree · Living Wheat and Gluten Free - How To Live Wheat and Gluten Free.  "Many people today have food allergies. A lot of them can not eat anything that contains Wheat and/or Gluten - like bread. This Club is for Allergy Sufferers and people with Celiac Disease, to exchange recipes, ideas, warnings and research. We all can learn from others!! Sometimes the support of another with the same problems can comfort you."  Yahoo! group.
  • Living_with_autoimmune_diseases · Living with autoimmune diseases.  "Welcome, I'm Didi, this group is for people with autoimmune diseases or think they might have a disorder like Lupus, Fibromyalgia, Arthritis, MS, Raynaud's Phenomenon, Narcotizing Vasulitis, Celiac Diseas(SPRUE)Peroarteritis nodosa,progressive systemic sclerosis, Alopecia Areata,Ankylosing Spondylitis, Behcet's Disease, Chronic Fatigue Syndrome, Crohn's Disease, Myasthenia Gravis, Psoriasis, Scleroderma, Juvinile Dermatomyosistis, Granulomatous Angiitis of the Central Nervous System(GACNS), Hashimoto's Disease, Autoimmune Enteropathy, Polyarteritis Nodosa, etc. Lets chat, and share and support each other. Need to vent, go ahead, we are not doctors, but we can help by sharing with each others, to know what to ask the doctor next time have an appointment. Just need a friend you come to the right place."
  • Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.            
  • NewYorkMetroCeliacSupport · New York Metro Celiac Support.  "This group is primarily designed for individuals and their family members who have a gluten sensitivity or Celiac disease who reside in the greater New York metro area (NYC, Long Island, Westchester, NJ and CT). However, those who follow a gluten free and/or casein free diet are welcome to join. Local support groups are welcome to post their upcoming events. Let's share our favorite restaurants, shops and tips."
  • Pacific_SCD · Pacific SCD.  "Information and Support for those in New Zealand, Australia and the Pacific area who are following or interested in the Specific Carbohydrate Diet from the book 'Breaking the Vicious Cycle' By Elaine Gottschall."
  • PhoenixCeliac · Celiac Support of Greater Phoenix.  "This is mailing list for Celiac Support of Greater Phoenix, Arizona. This is also a mailing list for Celiacs who live in the greater Phoenix area or plan to visit or move to this locale. You can use this mailing list to post your questions regarding the gluten free lifestyle in the Valley of the Sun. (Ex. Find a restaurant, GF shopping,etc) You will also receive support, as well as announcements from Celiac Support of Greater Phoenix regarding such things as meetings and events."
  • Ppcsg · Pikes Peak Celiac Support Group.  "We are the Pikes Peak Chapter of the Celiac Suppoirt Association located in Colorado Springs Colorado supporting Southern Colorado."
  • ROCKNorthernVirginia · R.O.C.K. (Raising Our Celiac Kids) Northern Virginia.  "This site is dedicated to serving members of the R.O.C.K. (Raising Our Celiac Kids) Support Group that serves the Northern Virginia Chapter. Families with Celiac Children are welcome to join, as well as others who may follow a gluten-free diet for other reasons. Here is a warm welcome to ROCK Northern VA/Metro D.C. we're glad you found us!!"
  • SAZCSG · So AZ Celiac Support Group.  "The Southern Arizona Celiac Support Group holds meetings, discussion, and dining groups in Tucson, and is here to help all the newly diagnosed (as well as the veteran celiacs) and those with gluten-intolerance. We can offer support, advice, recipes, tips and updates."   Yahoo! group.
  • Scdinfo.  "Welcome to the Specific Carbohydrate Diet Support Group. To join, send an email to scdinfo-owner@yahoogroups.com and type "Join" in the Subject Line. Goal: For those with Crohn's Disease, Ulcerative Colitis, IBS, Diverticulitis, Celiac Disease, Cystic Fibrosis and Chronic Diarrhea to gain intestinal health by following the SCD diet outlined in the book 'Breaking the Vicious Cycle' by Elaine Gottschall B.A., M.Sc..."
  • SillyYaks · SillyYaks (Celiacs) Online Support Group.  "This group is designed for sharing beneficial information among people whose lives are affected by Celiac Disease so they can lead a healthy gluten-free lifestyle."
  • SimplyCeliac · Simply Celiac : Keep it Simple.  "This is a support group for those feeling overwhelmed with the Celiac Disease. I feel the same way. Lets talk about it, share our experiences and learn how to handle it together."
  • Serock · South East Valley R.O.C.K.  "The South East Valley ROCK group provides support and information about raising children with Celiac Disease to its members."   
  • Stlouisalerts.  "We are a group of people who have Celiac Disease in the St. Louis, MO and Belleville, Il area. We alert each other where we can buy Gluten-free products and restaurants that understand Gluten-free."  Yahoo! group.
  • TampaROCK · ROCK of Tampa.  "Tampa R.O.C.K. is the Tampa chapter of the national support group Raising Our Celiac Kids. This list will provide an online resource for discussing issues and sharing ideas and resources for helping empower our in dealing with their special diets."
  • TerrificKidsWFA · Terrific Kids with Food Allergies.  "This is an email loop for parents of children that have food allergies or food sensitivities and also for friends or family of a children with a food allergy and would like to know more. This is a support group to share recipes, share alerts of certain foods that might have hidden ingredients in them, share stories, offer advice, or just chat. Parents have a stressful time in reading every ingredient, and worrying about fast food or sit down restaurants. A food allergy is a very scary thing and the timing that it takes to shop and read all ingredients is very hard. You are not alone though. We understand! I am hoping that by starting this new email loop, there will be other parents like myself that are looking for the same type of email loop I am looking for. I hope you will join so that we can share our situations. We can also discuss Eczema, behavioral problems due to foods, and even the weather!" 
  • TorontoCeliacs · Cdn. Celiac Assoc. - Toronto Discussion.  "This group is for those people in the Greater Toronto Area (GTA) who have, suspect they may have, or has a friend or relative with Celiac Disease (CD) or Dermatitis Herpetiformis (DH)."
  • Trianglerock · Triangle ROCK.  "Triangle R.O.C.K. is for Raising Our Celiac Kids. It's a local support group, and email list that aims to provide information and support for parents of children with Celiac Disease or following a gluten free diet for any reason.

    The goal of this list is to help facilitate communication with list members and organize meetings and events. Another goal is the dissemination of information such as recipes, studies, general information and product listings.

    I hope this will be a resource for everyone and everyone is welcome to post and share as much as they like."  Yahoo! group.   
  • UK-Coeliac.  "Coeliac-UK is an open, unmoderated, discussion list for those people in the United Kingdom interested in coeliac disease, and is not in competition with any other list. It has been designed to supply information which will help people just in the UK, unlike other international lists. Discussions could possibly include what food is gluten free, recipes, tips for eating when away from home, where to buy gluten free food (especially by mail order for the housebound) and generally a gathering place to share your thoughts, frustrations, joys and anything else you wish to share with your friends at Coeliac-UK."  Yahoo! group.
  • USASillyYaks · USA Silly Yaks (Celiacs).  "This group is designed for people who either have Celiac Disease or whose lives are affected by Celiac Disease. It is a place to share information and support so a healthy happy gluten-Free life can be achieved. We have an extensive links section here at USA Silly Yaks. Currently we have 200+ links that are great for research, answering questions, and finding your favorite snack food..."
  • WyomingCeliacs · Wyoming Celiacs.  "This group is for any one who has, knows someone with, or just wants to learn about Celiac Disease/Gluten Intolerance/Sprue/Dermatitis Herpetiformis/ that lives in Wyoming. This is also a mailing list for Celiacs who plan to visit or move to this locale. Use this group for support, education, and to exchange medical research."

 

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