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Articles
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Birth Defects articles from PubMed of the National Library of
Medicine. The articles listed here tend to be highly
technical research papers, but careful searching of the
articles can often uncover important and useful
information. Type the topic in the search box on the
PubMed Web site.
Books
Clinical Trials
Encyclopedic Information
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Forums
If you join one of these support groups, please mention
that you found their group through Medconsumer.info.
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AHeartbreakingChoice · For members of the AHC email group.
"A group for parents who have terminated loved & wanted
pregnancies after learning that their babies had
serious/fatal birth defects. This is a closed & moderated
group where only supportive notes will be posted.
Professionals, including genetics counselors, bereavement
counselors and physicians who regularly deal with this
type of loss, are welcome to lurk on the list."
Yahoo! Group.
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BeingSick · A global community of loving people who
understand what its like to be sick or care for a loved
one. "We are a community of loving supportive people
who understand what its like to be sick. We live with
illness, injury, disability, or care for those that do.
This group is a place where you are free to be yourself.
Share your frustrations about being sick, friendships,
family, and just about anything! We are the family who
understands when no one else does! We live your life too!
You are welcome to post in HTML, colors, send links, web
pages, poems, inspiration, e-cards, jokes, chat in our
chat room anytime! We are non-denominational, welcoming
all races, ages, religions and cultures. We know how tough
life is being sick, and we care. There is support for you
here anytime you need us. You are not alone." Yahoo!
group.
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Medconsumerinfo. "Medconsumer.info is your
starting point for searching the Web for medical
information. This forum exists for you to discuss, ask
questions, and answer questions about any aspect of
health, healthcare industry, and any aspect of being a
patient. Please take whatever advice you receive through
this forum to your doctor before changing or initiating
any medically-related behavior." Yahoo! group.
News
Organizations
- Fetal Alcohol
and Drug Unit. "The Fetal Alcohol and Drug Unit
is a research unit dedicated to the prevention,
intervention and treatment of Fetal Alcohol Syndrome (FAS)
and Fetal Alcohol Effects (FAE). Our main goals are to
conduct research on fetal alcohol and drug effects across
the life span, to disseminate information on fetal alcohol
and drug effects, to provide consultation for persons of
any age thought to be affected by prenatal exposure to
alcohol, and to provide training in human behavioral
teratology.
Over the past thirty-three years, our work has focused on
research to identify and examine the effects of prenatal
alcohol and drug exposure across the life span, with
particular emphasis on FAS and FAE, and on interventions
with high-risk mothers who abuse alcohol and drugs. Our
focus includes prevention and intervention projects on an
individual and community basis and multidisciplinary
population-based and clinical follow-up studies. The unit
also provides staffing and curricula for workshops,
invited lectures and conferences on FAS/FAE prevention and
intervention at the regional, national and international
level.
The Fetal Alcohol and Drug Unit is staffed by a diverse
group of more than forty individuals including faculty,
professional and classified staff, postdoctoral fellows,
undergraduate and graduate students, interns, volunteers,
visiting scholars, and consultants who are dedicated to
the prevention, intervention, and treatment of fetal
alcohol and drug effects."
Photographs
Videos
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