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Birth Defects

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Also see Pregnancy

Subtopics

Articles

  • Birth Defects articles from PubMed of the National Library of Medicine.  The articles listed here tend to be highly technical research papers, but careful searching of the articles can often uncover important and useful information.  Type the topic in the search box on the PubMed Web site.   

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Encyclopedic Information

Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

  • AHeartbreakingChoice � For members of the AHC email group.  "A group for parents who have terminated loved & wanted pregnancies after learning that their babies had serious/fatal birth defects. This is a closed & moderated group where only supportive notes will be posted. Professionals, including genetics counselors, bereavement counselors and physicians who regularly deal with this type of loss, are welcome to lurk on the list."  Yahoo! Group.   
  • BeingSick � A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group. 
  • Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.         

News

Organizations

  • Fetal Alcohol and Drug Unit.  "The Fetal Alcohol and Drug Unit is a research unit dedicated to the prevention, intervention and treatment of Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE). Our main goals are to conduct research on fetal alcohol and drug effects across the life span, to disseminate information on fetal alcohol and drug effects, to provide consultation for persons of any age thought to be affected by prenatal exposure to alcohol, and to provide training in human behavioral teratology.

    Over the past thirty-three years, our work has focused on research to identify and examine the effects of prenatal alcohol and drug exposure across the life span, with particular emphasis on FAS and FAE, and on interventions with high-risk mothers who abuse alcohol and drugs. Our focus includes prevention and intervention projects on an individual and community basis and multidisciplinary population-based and clinical follow-up studies. The unit also provides staffing and curricula for workshops, invited lectures and conferences on FAS/FAE prevention and intervention at the regional, national and international level.

    The Fetal Alcohol and Drug Unit is staffed by a diverse group of more than forty individuals including faculty, professional and classified staff, postdoctoral fellows, undergraduate and graduate students, interns, volunteers, visiting scholars, and consultants who are dedicated to the prevention, intervention, and treatment of fetal alcohol and drug effects."  

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