ALL PROFIT WILL BE DONATED TO ALZHEIMER'S RESEARCH.

This group is for individuals who want to:

-Be informed of AAQI's progress
-Help publicize the work of the Initiative
-Carry out the work of the Initiative
-Become advocates in the battle against Alzheimer's disease

It is a newsletter. You may reply to the author (Ami Simms, founder of the Art Quilt Initiative) but you may not post to the group.

It will be emailed when there is news to report or when help is needed.

For more information about the AAQI see: www.AlzQuilts.org." 

• AD_CareGivers · Alzheimer Care Givers Support.  "Please allow the group owner several hours to get to and aprove your request to join. This group is for care givers and the people that support them. Welcome to all those who care for, love and are responsible for the daily care of people who suffer with Alzheimers."   
• ADbkreviews · Alzheimer's Disease Book Reviews.  "Reviews of books about Alzheimer's disease and caregiving written for family caregivers. Includes biographies and personal experiences and poetry as well as how-to books about caring for people with disease and understanding it. If you have written a book on Alzheimer's and caregiving, feel free to post information about it and reviews others have given it." 
• AlzheimersandVaccinesUncovered · Alzheimers and Vaccines The Uncovered and Untold.  "To discuss current issues related to the increasing incidence of Alzheimer's & the potential link between excessive aluminum and mercury exposure via aluminum and thimerosal in vaccines. Topics include uncovered documents, court and hearing exhibits, meeting minutes, aluminum issues, mercury detoxification ("chelation"), aluminum and mercury-related issues/news, and vaccination-related issues/news.
  
  If you think vaccines had something to do with your Alzheimers, if you suspect, if you have questions, if you just want to educate yourself, you are invited to join. If you are of the medical community you are also invited, we ask is you keep an open mind. The goal is not to sway minds but to educate. Through honest, uncensored, and complete knowledge informed decisions can be made. Note: Find out about shocking research and uncovered and untold truths about Alzheimers and the possible connections to autism." 
• Alzheimers_anthology_authors · Alzheimer's Anthology.  "This is a group to discuss and bring about an anthology the profits of which will go to an Alzheimer's Disease research or support group." 
• Alzheimers · Alzheimer's Disease.  "Alzheimer's Disease Support and Information Group Welcome to the Alzheimer's Disease Support and Information Group.
  
  We provide support and compassion to caregivers, friends, and patients dealing with Alzheimer's Disease and related or undiagnosed forms of memory problems or dementia.
  
  This is an unmoderated group, but please keep messages on-topic as much as possible. Spam will not be tolerated - you will be banned from the group. Other than that, we are pretty open - we welcome questions, answers, venting, ranting, crying, laughing, etc."  
• AlzheimersCaregiving · Alzheimers Caregiving.  "A list for family and professional Caregivers of gents and ladies with Alzheimers Disease. If you are a Caregiver consider yourself one of God's Unsung Angels, for it takes a very special heart to insure dignity and quality of life for all regardless of age or state of health. Whether you are caring for a loved one at home, or in an assisted living home, come and share your thoughts, problems and feelings with us. We are here to support you, and maybe we can learn some tips from you!"   AlzheimerSupport · Alzheimer's Care Giver Support Group.  "This is a place for Care Givers of anyone with Alzheimer's to reach out for support and non-professional advice on how to deal with the day-to-day care of our Loved Ones. One can post suggestions, offer tips that have worked for them and their Loved One, send greetings to help lighten the day, offer prayers, voice concerns, and to know that you are not alone in this struggle.
  
  In order to achieve this purpose, please adhere to the following guidelines: 1. Subject lines should be used and changed as appropriate; 2. No foul language or dirty jokes; 3. Use consideration and moderation at all times; 4. We are here to support one another not "slam," "blame," or "flame" anyone; 5.Please refrain from political commentary or endorsements of individuals or groups or events and be very careful of postings which contain political, religious or ethnic content or bias.
  
  This is a very diverse group of people…from various backgrounds, belief systems, races, and political preferences. We are here for the common purpose of surviving the duties of care giving and no one should be offended by what is posted here. It is an unmonitored forum and the above guidelines will help insure that it remain that way. If you do not agree with the above guidelines then I (as the list owner) suggest that you reconsider your membership in light of the purposes set forth in the first paragraph of the Group description." 
• AlzheimersCaregivers.  "This is a group whose purpose is to provide a forum for family and friends and caregivers of Alzheimer's patients to give and receive support and information, so that we know we are not alone out there." 
• Altzheimercircleoffriends · Support group for family of Alzheimer patients to provide encouragement, inspiration and helpful ideas.  "This group is for anyone who loves or helps care for someone with Alzheimer's. It is a place to share ideas, questions and to receive information, encouragement and inspiration." 
• AlzheimersCouncil.  "ALZHEIMER'S ASSOCIATION Rio Grande Valley Regional Council S.T.A.R.Chapter (South Texas Affiliated Regions) Alzheimer's Disease and Related Disorders Association, Inc." 
• AlzheimersDisease · Alzheimers Disease.  "Alzheimer's Disease What is Alzheimer's?
  Alzheimer's Disease (AD) is the most common cause of dementia in older people. A dementia is a medical condition that disrupts the way the brain works. AD affects the parts of the brain that control thought, memory, and language. Although the risk of getting the disease increases with age, it is not a normal part of aging. At present the cause of the disease is unknown and there is no cure.
  
  AD is named after Dr. Alois Alzheimer, a German psychiatrist. In 1906, Dr. Alzheimer described changes in the brain tissue of a woman who had died of an unusual mental illness. He found abnormal deposits (now called senile or neuritic plaques) and tangled bundles of nerve fibers (now called neurofibrillary tangles). These plaques and tangles in the brain have come to be characteristic brain changes due to AD.
  
  Alzheimers Disease Group is sponsored by....
  
  http://www.CAREFINDERS.com
  "Take the guess work out of finding the right carehome or nursing home for someone you love"
  FREE 24 hour service. Serving entire state of California
  PHONE:650.921-3602." 
• Alzheimers_disease_support · Alzheimer's Disease Support Group.  "This group was created by me. I lost my grandpa to Alzheimer's disease on September 25, 2004. The past few months have been really hard. I have been wanting to start a group for support, but never have done it before. I just want to be educated and also to help others become educated about this heartbreaking disease that seems to take the ones we are closest too away.  I know that the whole memory loss and dementia are very hard to deal with. That is why we all need to be educated, and hopefully a cure will come soon. Please feel free to join this group. We all can learn about this together. No matter if you are someone who has lost a loved one, or someone who is dealing with all of this now, it doesn't matter. Just come and join, and we can do this together....."  
• Alzheimer Society of Canada online forums.
• Alz-igl · Alzheimer's Association Iowa Great Lakes.  "This is a Yahoo Groups mailing list created for individuals and support groups dealing with Alzheimer's disease, dementia and memory loss in and near the Iowa Great Lakes area, including but not limited to those served by the Spencer Branch Office of the Alzheimer's Association, which includes residents of five counties in northwest Iowa: Buena Vista; Clay; Dickinson; Emmet; Palo Alto. It's also a communications resource for members of the Iowa Great Lakes Advisory Council and members of the Iowa Great Lakes Memory Walk, both of which are part of the Big Sioux Chapter of the Alzheimer's Association. It's used for group communication between meetings of the Advisory Council and meetings of the Memory Walk Committee. While this group list was initially created for those 'taking steps to end Alzheimer's' via the annual Iowa Great Lakes Memory Walk, group membership has expanded to include other individuals and organizations dealing with Alzheimer's, dementia and memory loss in and near the aforementioned five counties.
  
  Alzheimer's Association: "Our mission is to eliminate Alzheimer's disease through the advancement of research, to provide and enhance care and support for those affected, and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer's." 
• Alznycjc · Alzheimer's Association NYC Junior Comm.  "The Alzheimer's Association NYC Junior Committee Member's list and page." 
• Austin_alzheimers · Alzheimer's Association - Austin, TX.  "This newsgroup was designed to promote educational events for professional and family caregivers of Alzheimer's patients in Central Texas.
  
  For more information:
  1-800-367-2132
  http://www.alz-austin.org." 
• Alzheimers_karachi · Alzheimers Disease Karachi Pakistan.  "This is a support group for the families of patients with alzheimer's disease and other types of dementia (multi-infarct, Pick's, Lewy body, Parkinson's, senile dementia & others). It is certainly open to patients themselves having insight. Also welcome to join are friends, caregivers, therapists and interested professionals." 
• Best-Friends-Alzheimers-Disease · Best Friends - Alzheimer's Disease.  "Perhaps the most profound and shared impact Alzheimer's disease has upon individuals living with the diagnosis, and their families and friends is what it does to life long relationships. Kids take care of parents, dads end up taking care of moms, ways of relating to each other of depending on each other, of loving each other are scrambled and sometimes lost. Some turn into parents of their own parents, others turn into children of their own children. We all become angry and fearful; of the disease, of each other, and our selves.
  
  This site provides a sheltered place for those of us in the midst of this turmoil to vent, to cry, to search, to support, and to begin to redefine ourselves and our loved ones in ways which factor in the impact of the disease. Share the good and the bad. Ask for information. Let that part of yourself which is best understood by those walking down the same disease path as you outside of yourself.
  
  Keeping feelings inside is never the best long range solution to stree. We aren't doctors or professionals. We are fellow travelers. Take from us what seems best for you and leave part of the best of yourself for others to take with them.
  
  This is a great group to make new best friends who fit into the new life imposed on you by this terrible disease.
• Caregivers-Army-Admin.  "CAREGIVERS ARMY is uniting to create an ARMY that will speak as one voice to the bureaucracies that hamper our efforts to assist our loved ones. This group is also very supportive in dealing with many diversified caregiver issues.
  
  The Mission
  
  Aware of the fact that Alzheimer's Disease is considered by the epidemiologists as the disease of the century and that it is a growing problem with now over four million sufferers in this country and as many as 19 million people who have a patient in the family needing care, we feel the need to do something about it.
  
  We will:
  
  1. Work to increase public awareness of the problem Alzheimer's poses to the country, and to enlist their help in removing the problem.
  
  2. Educate every one about the disease so that all can be of real help to patient and caregiver.
  
  3. Petition the government for more money for research to find a cure. We will collect signatures to take to Washington, each year prior to the budget building, until a cure is found.
  
  4. Propose and support legislation to be helpful to patients and caregivers such as Medicare coverage of Alzheimer's in it's later stages and some support for caring for patients at home.
  
  Carolyn Haynali
  Founder & Spokesperson Caregivers Army
  http://www.caregiversarmy.org
  e-mail carladydove1@juno.com." 
• DASN · DASNI.  "DASN, Dementia Advocacy and Support Network International is a non-profit organization for Persons with Early Stage dementia and their supporters. Our goal is to improve the lives of all People Living with Early Stage dementia of any kind. Dementia Advocacy and Support Network International (DASNI) is a place where we can communicate with each other. For further questions please email: Mary at http://www.marylockhart@atlinkwifi.com or Carole at csmbase@sbcglobal.net  Please read the file "DISCLAIMER" in the folder "DISCLAIMER" in the files section of this site - thank you. ALSO: VISIT OUR WEBSITE: http://www.dasninternational.org." 
• Dementia_assist · Dementia Assist.  "Alzheimer's Society; Hambleton & Richmondshire Branch
  Caring for people with dementia and their families!
  
  To support one another and to gain support from your local branch if required." 
• DementiaAlzheimersSupport.  "This group is dedicated to my 86 year young Great Grandmother, Lola O. Waddle. She believes that she has visitors when no one is there and she believes that relatives who have passed are in her home. Her doctor (if you would call her one) has not treated this condition and merely blows it off as "Old age". I have started this group in hopes of finding some answers and to bring people together to discuss options and experiences. No Soliciting, let's have respect for those of us who are here for for support and answers. Thank You." 
• Dementiahope · Dementia Support Association.  "This group is started to concentrate on a related Alzheimers disease called Dementia. My 89 year old great grandmother suffers from the disease and has to stay in a nursing home. I am fighting so that more research for treatment and possibly a cure. Although there is some treatment, it is not enough. Some days my grandmother is fine and might talk, and some days she is dead silent. Please help in the battle to find out more about this devastating disease." 
• Dementia-IDlistserv · Discussion group for persons interested in issues related to dementia among persons with intellectual disabilities.  "Discussion group for persons interested in issues related to Alzheimer's disease and related dementias among persons with intellectual and developmental disabilities. Discussion issues include case inquiries, information about scales, tests, and instruments; issues of assessment and diagnosis; options or models for care management and supports, and any other areas related to the main topic. Comments and inquiries can be from research studies or practice applications. The group is affiliated with the International Association for the Scientific Study of Intellectual Disabilities' (IASSID) Special Interest Research Group on Aging."   
• Dementiarescue · Dementia Rescue. "Dementia Rescue is an online message board for those who are seeking support for dealing with various forms of dementia such as Alzheimer's Disease, Vascular Dementia, Pick's Disease and Frontal Temporal Lobe Disease. This is a site that welcomes any and all who are seeking to educate themselves about dementia, whether it be the individual with dementia, or family members.
  
  We have four group members who are authors! Please ask us about our authors, and learn more about dementia and coping skills- both from a caregiver's perspective as well as from a woman who has Early Onset Alzheimer's Disease, and her son.
  
  'Young Hope, Broken Road' was written by the author and her young son. The revised edition will be available through your local Alzheimer Chapter or through the Publisher, Outskirts Press, by May 2007. This author also wrote 'I Remember When'. *When your loved one strikes out or changes, remember it isn't them it is the disease.
  
  Deborah Uetz wrote 'Into The Mist', about her experience watching her father deteriorate from the effects of AD.
  
  Jacqueline Marcell wrote 'Elder Rage'."
• Dementiarescueearlyonset · Dementia Rescue Early Onset.  "This is a support group for those specifically affected by different types of Early Onset Dementia. The many types of dementia that included are Alzheimer's Disease, FTD (picks disease), Vascular Dementia, Lewy Body, Binswangers and etc. If you are a person with Early Onset Dementia please know that this is a "safe" place for you to come to, to ask questions, share your stories or just to make a friend.
  
  Join us in chat Monday - Friday chats are open 24/7, however, scheduled chats are Mon-Friday 3pm, 9pm & 11pm Eastern Time. Go to http://www.alzinfo.org  and click on Alzheimer Community. Hope to see you there!"  
• Dementiateachers.  "For clinical and academic teachers/lecturers of people working with dementia to share ideas and network. To have the opportunity to collaborate and disseminate research findings and good practice." 
• DementiaUSA.  "Description  DementiaUSA MISSION STATEMENT: TO DEFEAT DEMENTIA
  
  Goals
  
  I. Raise awareness of the numbers of people in the early stages of dementia and of their unique needs
  
  II. Empower people with dementia to take active roles in their own lives and the management of their illnesses
  
  III. Promote connections between people and organizations dealing with dementia
  
  IV. Promote research into treatment and cures for illnesses causing dementia
  
  V. Promote strong advocates for effective public policy, products, services, resources and activities designed to improve the quality of life for people with dementia and for their carers.
  
  
  Join our "Alliance to Defeat Dementia." You can feel much better about living with dementia if you work with others with dementia who intend to defeat the disease. Helping others helps you as well. This group is for anyone in the USA interested in advocacy who has Alzheimer's, vascular dementia, Pick's, FLD, stroke-related dementia or other types of dementia.
  
  No FLAMING, advertising or personal attacks will be tolerated. New members will be moderated for a brief time to minimize spamming. Members are encouraged to help with public education and awareness of dementia locally, regionally and nationally; to engage others with dementia in face-to-face meetings; to advocate and to attend conferences when possible.
  
  Supportive emails and chats are available through the DASN Yahoo group and through dementiarescueearlyonset. Visit DASNI Chat at http://www.alzinfo.org/community/ or visit the Alzheimer's Association's chat room at http://www.alz.org."
• Early-Onset_Alzheimers_Caregivers_Group · Early Onset Alzheimers Caregivers.  "Although this support group is for anyone with a loved one with EOAD (meaning diagnosed with Alzheimer's UNDER the age of 65) anyone is welcome. My goal, in this group, is to provide encouragement, compassion, and information for others who are walking together on this journey. I also believe that this is a safe environment for anyone to say what they need to say without any judgments."     
• Empowering Caregivers Forums. Sponsored by National Organization For Empowering Caregivers (NOFEC).
• FACGBoard · Friends of Alzheimer Caregivers.  "Friends of Alzheimer Caregivers is a non-profit organization that offers understanding, help and hope to Southern California families, overwhelmed by the daily care of loved ones with dementing illnesses. Friends provides short-term financial grants to family caregivers who need professional dementia care and do not qualify for assistance from other sources. Friends sponsors educational programs for caregivers, including an annual conference, the Celebration of Caregiving, that brings together more than 300 professionals and family members from throughout Southern California to learn from one another."  
• Forgetmenot.  "Welcome to the Nevada County cyber support group for caregiver's of individuals with Alzheimer's or other progressive dementias. This group was started by the Alzheimer's Outreach Project to provide information and support to caregiver's. Most members are family caregiver's while others are professionals who serve in this field. Please feel free to ask questions, share your experiences, contribute your opinions and offer support to others who share this journey.
  
  Please remember that any information or advice found here should not replace the medical recommendations by your healthcare professional. If you are concerned that your loved one may be experiencing a medical emergency, please do not wait for a response here before seeking immediate medical attention."   
• Hudsoncreek · Hudson Creek Alzheimer's.  "Welcome to our place. We're here to offer support and loving care to one another as families of individuals reaching the sunset years with Alzheimer's Disease or Dementia as well as individuals suffering from related diseases of memory loss at any age. We're not experts, just family members on the walk with our loved ones..." 
• Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.
• MSAlzAgeNet · MS Alzheimer & Aging Network.  "This is a place for all interested professionals and volunteers in Mississippi to share information and post events regarding Alzheimer's disease and aging." 
• Mymotherhasalzheimers · My Mother has Alzheimer's - A place for caregivers of Alzheimer family members.  "Welcome to our club. I have been searching the web for a site to discuss Alzheimer's in a parent. I needed to discuss frustrations, challenges, changes, even the good times, the celebrations.
  
  Join me on this journey." 
• Paingroup · Pain group.  "Relationship of Pain Threshold and Pain Tolerance to Cognitive Functioning in Alzheimer's Disease."  
• Roundrockalzheimersupport · Round Rock TX Alzheimer's Support Group.  "Welcome to our support group. We are here to help each other. Round Rock Support Group Reaches Out to the Sandwich Generation.
  
  Many modern families face the dilemma of having to care for elderly loved one with increasing needs and the raising of their own children. Often this arrangement creates extra stress on the adults in this sandwich generation. In alliance with the Alzheimer's Association, The Cottages at Chandler Creek provides a monthly support group meeting in conjunction with this Yahoo Group! to help elevate the stresses of caring for a loved one with memory loss. We would be delighted to assist you in any way we can. We encourage everyone to discuss their current challenges with our group and openly invite you to join our support group at anytime. This monthly meeting is currently at The Cottages at Chandler Creek on the fourth Tuesday of every month. The support group is facilitated by the Clinical Director of Seniority Counseling & Consultation, Dawn Lakamsani, LMSW-ACP and the Executive Director of The Cottages at Chandler Creek Certified Alzheimer's Care Community, Melissa Brower."  
• Sarasotacaregivers · Sarasota Senior Center Caregivers Group.  "The Sarasota Senior Center Caregivers Group is managed by the Caregivers Alzheimer's Association Ambassador's of the Senior Friendship Center of Sarasota, Florida. The group includes individuals who are or were caregivers for loved ones, partners and parents suffering from debilitating diseases, such as Alzheimer, Louibody, Parkinson's and other dementia related diseases. The purpose of the group is to share experience, sources and knowhow related to caregiving. Participants may post questions, respond to questions, identify sources for the group or contribute in any way to help fellow participants." 
• Soft-Foods · Soft Foods.  "There are many people who are giving care to those who are having dietary problems. Alzheimer's patients who can no longer chew, then later have problems with swallowing. Parkinson's patients, people with Cerebral Palsy, people with - and those recovering from Cancer. This site is a place to exchange recipes that can be tasty and healthful - recipes can be served without being blended or processed - or taste good after being blended or processed. Also, we share recipes for easy to digest foods and soft foods. Some foods and recipes here are even appropriate for those who wish to make their own baby food!" 
• Spouseswithalzheimers · Spouses with Alzheimers - My spouse has Alzheimers.  "A place were other spouses can meet and discuss caregiving and other issues that only spouses have to deal with. The day to day issues that only you and I understand. A special welcome to younger caregivers faced with this horrible disease, as I am with my spouse.
  
  If you have the same frustrations, pain, challenges, changes and oh yes the good times as myself, then share them and hopefully we can help each other through this horrible journey. Just post a message and we will respond. Thank You."  
• TeensTalkingAboutAlzheimers · Teens talking about Alzheimer's disease.  "This group is for teens who have relatives with Alzheimer's disease. Come to talk here about how to deal with it, or give advice to others."