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Organizations
International
- World Allergy
Organization (WAO). "The World Allergy
Organization (WAO) is an international umbrella
organization whose members consist of 70 regional and
national allergology and clinical immunology societies
from around the world. By collaborating with member
societies, WAO provides direct educational outreach
programs, symposia and lectureships to approximately
38,000 individual members in 92 countries."
United States
- All Allergy.
"This Web site has been launched to respond to the need
for rapid access to all allergy and intolerance
resources on the World Wide Web."
-
Allergypot. "Allergypot is an association
composed of parents who have children suffering from
allergy. With the increasing number of people suffering
from allergy (i.e. asthma, atopic dermatitis, food
allergy, etc.), it is estimated that nearly one in three
Japanese have some kind of allergy today. We started out
as a group to support children who are suffering from
allergic symptoms by actively working with schools and
other educational institutions so that the teachers and
staff working with children would have a broader
understanding of allergy and the kind of care children
with allergy need. Our goal is to make it possible for
the children, parents, and family members become
actively involved in learning about the disease, and
share their experiences about treatment and child
rearing with each other, so that eventually, enough
valuable information would be accumulated to offer to
other patients and the society." Comment:
The site is provided in Japanese and English.
- Allergy & Asthma
Network Mothers of Asthmatics (AANMA).
"Founded in 1985, AANMA is a national nonprofit network
of families whose desire is to overcome, not cope with,
allergies and asthma. The shortest route to that goal is
knowledge - that's why AANMA produces the most accurate,
timely, practical, and livable alternatives to
suffering.
- American Academy of
Allergy & Immunology. "The mission of the
American Academy of Allergy, Asthma & Immunology is the
advancement of the knowledge and practice of allergy,
asthma and immunology for optimal patient care."
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- American College
of Allergy, Asthma & Immunology. "The American
College of Allergy, Asthma and Immunology is an
organization of allergists-immunologists and related
health care professionals dedicated to quality patient
care through research, advocacy and professional and
public education."
- Asthma and Allergy
Foundation of America (AAFA). "The Asthma and
Allergy Foundation of America (AAFA) is the premier
patient organization dedicated to improving the quality
of life for people with asthma and allergies and their
caregivers, through education, advocacy and research.
AAFA, a not-for-profit organization founded in 1953,
provides practical information, community based
services, support and referrals through a national
network of chapters and educational support groups. AAFA
also sponsors research toward better treatments and a
cure for asthma and allergic diseases."
-
AllergySupport.org. "AllergySupport.org was
created by my wife and I as an online community for
people with allergies and parents of kids with
allergies...Mike and Rhonda"
- American Partnership
for Eosinophilic Disorders (APFED). "The
American Partnership for Eosinophilic Disorders (APFED)
is a 501c3 nonprofit organization founded in December
2001 by a group of mothers of young children living with
Eosinophilic Disorders. We are a patient advocacy group
dedicated to improving the lives of those living with
eosinophilic disorders."
-
Cincinnati Center for Eosinophilic Disorders.
"For families dealing with eosinophil-associated
disorders, the road to diagnosis can be frustrating and
challenging since symptoms masquerade as a number of
diseases. But once diagnosed, symptoms of these
disorders can be effectively managed in many cases.
The team of specialists at the Cincinnati Center for
Eosinophilic Disorders (CCED) at Cincinnati Children's
has extensive experience with these rare disorders. We
have intense interest in Eosinophilic disorders, their
effects on health, and the impact on individuals and
families. Our center is the international leader in
caring for patients with these conditions and
researching the cure for these disorders."
-
CURED
(Campaign Urging Research for Eosinophilic Disease).
"In January 2003, our daughter, Jori, was diagnosed with
Eosinophilic Disease.
It took a long time to make that diagnosis. Her red
blood levels showed that she was malnourished. She had a
lot of stomach aches and nausea. The doctors believed
she had Celiac disease. She eventually had an endoscope
and when they scoped her they found her stomach filled
with inflammation, polyps and severe bleeding.
We had no idea where to turn to. So little was, and
still is, known about the illness that we spent hundreds
of hours researching where to go and what to do. We have
found some solace through support groups and our journey
has brought some wonderful people into our lives.
The one thing we could not grasp was that there is no
cure for Eosinophilic disease. And there is little
treatment. This has been the hardest part of all--
feeling helpless and watching our daughter suffer.
And so began our journey of starting a foundation. With
energy and determination that we did not know we had, we
elicited the help of family and friends. Within a year,
CURED was founded. As it’s name suggests, Campaign
Urging Research for Eosinophilic Disease we are
committed to finding a CURE for Eosinophilic disease.
We are still amazed at the wonderful response we have
gotten. We began CURED at our kitchen table in a
northwest suburb of Chicago. We now operate fundraisers
across the country. And we are still growing thanks to
so many people who have shown how much they truly care.
Thank you for your support.
Ellyn & Fred Kodroff"
Testing
- Home testing for Allergies. Click the button
to obtain testing information.
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