Forums

If you join one of these support groups, please mention that you found their group through Medconsumer.info.

• BeingSick · A global community of loving people who understand what its like to be sick or care for a loved one.  "We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome to post in HTML, colors, send links, web pages, poems, inspiration, e-cards, jokes, chat in our chat room anytime! We are non-denominational, welcoming all races, ages, religions and cultures. We know how tough life is being sick, and we care. There is support for you here anytime you need us. You are not alone."  Yahoo! group. 
• Bronchiectasis Chat Group.  From WebMDHealth.
• Bronchiectasis_support · Bronchiectasis Support and Information.  "Bronchiectasis is a condition where some bronchi and smaller bronchioles in our lungs are permanantly dilated. Patients tend to get an accumulation of mucas in affected areas of their lungs which if not cleared may lead to infection and more lung damage.
  
  Bronchiectasis is damage to our lungs which has causes.This is generally a bad or repeated infection. For example TB, Whooping cough, genetic conditions like CF, PCD or Alpha1.And in a few cases inhalation of an object.
  
  This group is to provide information and support to fellow sufferers and carers. Bronchiectasis affects our morbidity not our mortality. With proper treatment and support which differs for each of us we can enjoy a long and healthy life.
  
  In this support group we can find out what works for others and let them know what works for us. We can have a place to whinge when we are not feeling well. We can discuss bronch, the issues that may happen with long standing disease like pseudo, osteo, heart involvement. I am sure there are more!
  
  Let's start talking, supporting each other and sharing information."  Yahoo! group. 
• Immotile Cilia Syndrome.  "This is a place for anyone who has been diagnosed with "Primary Ciliary Dyskinesia (PCD) or Kartagener's Syndrome (KS)or Immotile Cilia Syndrome (ICS)" or who has had their life touched by someone with PCD or KS or ICS...a place to gather for support and information."  Yahoo! group. 
• Kartageners · Kartagener's Syndrome.  "I would like those who have Kartagener's syndrome with the variation of dextrocardia, partial or total situs inversus, infertility, and other symptoms a place where we can talk to unite as a group. Yahoo! group. 
• Kartagener_Syndrome · Kartageners Syndrome & PCD Support.  "Welcome to the Global Health Network's support community for people affected by "Kartagener Syndrome (KS) and Primary Ciliary Dyskinesia (PCD)."
  
  This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder."  Yahoo! group.       
• Medconsumerinfo.  "Medconsumer.info is your starting point for searching the Web for medical information. This forum exists for you to discuss, ask questions, and answer questions about any aspect of health, healthcare industry, and any aspect of being a patient. Please take whatever advice you receive through this forum to your doctor before changing or initiating any medically-related behavior."  Yahoo! group.
• Pcduk · PCD & Kartagener's Syndrome - UK.  "This is a place for anyone who has been diagnosed with "Primary Ciliary Dyskinesia (PCD) or Kartagener's Syndrome (KS)or Immotile Cilia Syndrome (ICS)" or who has had their life touched by someone with PCD or KS or ICS...a place to gather for support and information. This group is Region specific for those who live in the United Kingdom."  Yahoo! group. 
• Primary Cilary Dyskinesia.  "This is a place for anyone who has been diagnosed with "Primary Ciliary Dyskinesia (PCD) or Kartagener's Syndrome (KS)or Immotile Cilia Syndrome (ICS)" or who has had their life touched by someone with PCD or KS or ICS...a place to gather for support and information."  Yahoo! group.           

News

• Kartagener Syndrome news from Google News.  Because this is a rare disorder, there may not be any news at Google News at any given time.  The link is accurate.

Organizations

• American Lung Association.  "The mission of the American Lung Association® is to prevent lung disease and promote lung health.
  
  The American Lung Association® is the oldest voluntary health organization in the United States, with a National Office and constituent and affiliate associations around the country. Founded in 1904 to fight tuberculosis, the American Lung Association® today fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health. The American Lung Association® is funded by contributions from the public, along with gifts and grants from corporations, foundations and government agencies. The American Lung Association® achieves its many successes through the work of thousands of committed volunteers and staff."  Also see their page on Kartagener Syndrome.
• Genetic Alliance.  "Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
  
  As a coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, Genetic Alliance is at the crossroads of the genetics community."
• National Organization for Rare Disorders (NORD) Kartagener Syndrome.
• Primary Ciliary Dyskinesia (PCD Foundation).  "The PCD (Primary Ciliary Dyskinesia) Foundation seeks to promote research, increase public awareness, and provide information and support services for individuals with inherited ciliary disorders and their caregivers."

Photographs

• Kartagener Syndrome photographs from Google Images. ( New 1/08 )

Videos

• Kartagener Syndrome videos from YouTube.com. ( New 1/08 )

Web Sites

• Medline Plus.  COPD (Chronic Obstructive Pulmonary Disease)